our daughter Hannah was born with a myelomeningocele. This is "a defect of the backbone and spinal cord. Before birth, the baby's spine, the spinal cord and the spinal canal do not form or close normally. A myelomeningocele is the most serious form of Spina Bifida" - webmd.com
Although we are confident in Hannah's determination and ability to overcome obstacles, she will likely always have some struggles with her mobility.