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Magda Guzy raised £4,367.99 from 192 supporters
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Closed 31/08/2020
Weʼve raised £4,367 to Help Hanna fund her gene therapy to STOP SMA(Spinal Muscular Atrophy).
- Funded on Monday, 31st August 2020
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Story
IMPORTANT :
WE HAVE BEEN TAKEN CARE BY UK REGISTERED CHARITY, IF YOU WOULD LIKE TO DONATE PLEASE FOLLOW LINK BELOW AND CLAIM GIFT AID IF APPLICABLE
https://justgiving.com/fundraising/hannalaczkowskasma
Hanna is 12 months old, lives in London and suffers with SMA type 1 (the worst one).
SMA or Spinal Muscular Atrophy is a genetic condition that affects muscles. Children with this condition have difficulties in holding their heads up, swallowing and breathing and in most cases, their respiratory system fails.
Gene therapy in the States is the only chance to save Hanna’s life. It costs over 2 million dollars! You can read about this medicine here Zolgensma and treatment. This price makes this medicine the world’s most expensive treatment and not readily available to the ordinary people. The only condition is that the child must be less than 2 years old so we do not have much time!
My question is: Is it really fair to put such a price on child's life??? I do not think it is, but big companies think otherwise. Can you imagine the pain in Hanna's parents hearts knowing there is a medicine which can save Hanna's life but the price is just too high??? That is really heartbreaking and very very sad. So please please I beg you do not scroll without any action, please help us to send her to USA.
This little Angel relies on people like us, people of good heart who are willing and wanting to help. I know with your help we can do it!
If you would like more information about how you can help email: madzzia1@gmail.com. We must save Hanna!
Updates
12
- 4 years ago
Magda Guzy
4 years agoFrom Power for Hanna: 'WE ARE AFRAID that Hanna's condition may worsen at any time. WE ARE AFRAID that our lives will always be associated with tears and pain. WE ARE AFRAID that Hanna will never get to know the world the way children should. WE ARE AFRAID that we will not be able to raise the money on time. WE ARE AFRAID that one day we will have to tell Hanna why she didn't get the chance. HELP us to disenchant our reality, help us SAVE our daughter! ❤️' Magdalena & Przemek Laczkowscy
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- 4 years ago
Magda Guzy
4 years agoFrom Power for Hanna: 'Day after day we are looking at Hanna how she has to deal with all the treatments. We can't just enjoy ourselves, lie down without worries, just be happy. We'd love to take this disease from her so much and all shed tears. We will never stop fighting for Hanna. Beloved, we are asking you for further support and HELP! Together we have great POWER!' #spinalmuscularathropytype1 #fight #rdzeniowyzanikmięśni #sma1 #siepomaga #betterlife #dadanddaughter #TataKróliczka
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- 4 years ago
Magda Guzy
4 years ago"...We don't have much time for fun and to play around,most of the day rehabilitation takes time,suctioning of excess amount of saliva,assisted by the machine to get rid of lung secretions(...)We try to be normal parents for Hania who give her a sense of security...We are paralyzed by the awareness that Hania is ill,fear in our hearts evokes tears and sadness,we can't give her a normal childhood...we try to return her smile,when Hania smiles,she is the bravest and strongest in the world,she gives us strength to fight(...)Together we have POWER"
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Magda Guzy started crowdfunding
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Supporters
192
Anonymous
Jun 19, 2020
£30.00
Barbara Kozubek
Jun 19, 2020
£5.00
Anonymous
Jun 17, 2020
Anonymous
Jun 17, 2020
£2.00
Allan stevens
Jun 15, 2020
All the best (Marta Rebiz) alerted me to this so gladly would contribute good luck 🤞🤞
£100.00
Aneta
Jun 13, 2020
Thank you Ana for donating £20 to Hania ❤️❤️❤️
£20.00
Anonymous
Jun 12, 2020
Hope this help gets one step closer to your target :) With lots of Love ❤❤❤
£20.00
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