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Magda Guzy raised £4,367.99 from 192 supporters

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Closed 31/08/2020

4%
£4,367
raised of £100,000 target by 192 supporters

    Weʼve raised £4,367 to Help Hanna fund her gene therapy to STOP SMA(Spinal Muscular Atrophy).

    London, UK
    Funded on Monday, 31st August 2020

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    Story

    IMPORTANT :

    WE HAVE BEEN TAKEN CARE BY UK REGISTERED CHARITY, IF YOU WOULD LIKE TO DONATE PLEASE FOLLOW LINK BELOW AND CLAIM GIFT AID IF APPLICABLE

    https://justgiving.com/fundraising/hannalaczkowskasma

    Hanna is 12 months old, lives in London and suffers with SMA type 1 (the worst one).

    SMA or Spinal Muscular Atrophy is a genetic condition that affects muscles.  Children with this condition have difficulties in holding their heads up, swallowing and breathing and in most cases, their respiratory system fails.

    Gene therapy in the States is the only chance to save Hanna’s life. It costs over 2 million dollars! You can read about this medicine here Zolgensma and treatment. This price makes this medicine the world’s most expensive treatment and not readily available to the ordinary people. The only condition is that the child must be less than 2 years old so we do not have much time!

    My question is: Is it really fair to put such a price on child's life??? I do not think it is, but big companies think otherwise. Can you imagine the pain in Hanna's parents hearts knowing there is a medicine which can save Hanna's life but the price is just too high??? That is really heartbreaking and very very sad. So please please I beg you do not scroll without any action, please help us to send her to USA.

    This little Angel relies on people like us, people of good heart who are willing and wanting to help. I know with your help we can do it!

    If you would like more information about how you can help email: madzzia1@gmail.com. We must save Hanna!

    Updates

    12

    • Magda Guzy4 months ago
      Magda Guzy

      Magda Guzy

      4 months ago

      From Power for Hanna: 'WE ARE AFRAID that Hanna's condition may worsen at any time. WE ARE AFRAID that our lives will always be associated with tears and pain. WE ARE AFRAID that Hanna will never get to know the world the way children should. WE ARE AFRAID that we will not be able to raise the money on time. WE ARE AFRAID that one day we will have to tell Hanna why she didn't get the chance. HELP us to disenchant our reality, help us SAVE our daughter! ❤️' Magdalena & Przemek Laczkowscy

      Update from the Page owner

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    • Magda Guzy5 months ago
      Magda Guzy

      Magda Guzy

      5 months ago

      From Power for Hanna: 'Day after day we are looking at Hanna how she has to deal with all the treatments. We can't just enjoy ourselves, lie down without worries, just be happy. We'd love to take this disease from her so much and all shed tears. We will never stop fighting for Hanna. Beloved, we are asking you for further support and HELP! Together we have great POWER!' #spinalmuscularathropytype1 #fight #rdzeniowyzanikmięśni #sma1 #siepomaga #betterlife #dadanddaughter #TataKróliczka

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    • Magda Guzy5 months ago
      Magda Guzy

      Magda Guzy

      5 months ago

      "...We don't have much time for fun and to play around,most of the day rehabilitation takes time,suctioning of excess amount of saliva,assisted by the machine to get rid of lung secretions(...)We try to be normal parents for Hania who give her a sense of security...We are paralyzed by the awareness that Hania is ill,fear in our hearts evokes tears and sadness,we can't give her a normal childhood...we try to return her smile,when Hania smiles,she is the bravest and strongest in the world,she gives us strength to fight(...)Together we have POWER"

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    8 months ago

    Magda Guzy started crowdfunding

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    Page last updated on: 6/19/2020 22.21

    Supporters

    192

    • Anonymous

      Anonymous

      Jun 19, 2020

      £30.00

    • Barbara Kozubek

      Barbara Kozubek

      Jun 19, 2020

      £5.00

    • Anonymous

      Anonymous

      Jun 17, 2020

    • Anonymous

      Anonymous

      Jun 17, 2020

      £2.00

    • Allan stevens

      Allan stevens

      Jun 15, 2020

      All the best (Marta Rebiz) alerted me to this so gladly would contribute good luck 🤞🤞

      £100.00

    • Aneta

      Aneta

      Jun 13, 2020

      Thank you Ana for donating £20 to Hania ❤️❤️❤️

      £20.00

    • Anonymous

      Anonymous

      Jun 12, 2020

      Hope this help gets one step closer to your target :) With lots of Love ❤❤❤

      £20.00

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    About Crowdfunding
    About the fundraiser
    Magda Guzy

    Magda Guzy

    London, UK

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