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Bernadette Parker

Bernadette Parker is crowdfunding

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£7,004raised of £13,000 target by 1053 supporters

Weʼre raising £13,000 to Help Stacey get the diagnostic testing she needs for a better future

Rochdale, UK

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

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Story

Hi Everyone,

Thank you for visiting our page.

We have decided to update the story as of today (4.4.19) as things have changed and developed since the fundraising began on 31st December 2018.

I am still fundraising for my Daughter, Stacey. She still requires tests and investigations that the NHS will not fund.

To date; thanks to the kind generosity of friends, family, strangers, supporters etc we have managed to get Stacey the upright MRI tests she needed in March 2019.

The MRI results were then sent to a consultant in Barcelona for review. He is a neurosurgeon and a spinal surgeon. From the MRI results he diagnosed Stacey with Atlantoaxial Instability (AAI) & Atlantoaxial Subluxations (AAS). It was most evident when Stacey turned her head left and right.

Along Stacey's health journey over the last 3+ years she has been given many different diagnosis including but not limited to; Mast Cell Activation Syndrome (MCAS), Connective Tissue Disease, Postural Orthostatic Tachycardia Syndrome (PoTS), Lipoedema & Lympodema.

Stacey's health and life have changed dramatically. She worked full time for the Local Authority but now aged just 31, was medically retired last year at just 30. She had a lovely home but has had to sell it and move back in with myself (her Mum) and her Dad.

We hope your kind donations will help us get the tests, diagnosis and possibly treatment she needs to get better. We still need to get Stacey;

- Autoinflammatory Panel Disease testing (it was suggested by a Professor in Rheumatology that Stacey may have an autoinflammatory disease considering the only treatment that seems to help is high dose steroids.

- Genetic Testing for EDS as it has been suggested that Stacey may have EDS due to all her issues/symptoms and the fact she has the linked conditions MCAS & PoTS.

- Digital Motion X-ray is needed to assess Stacey's AAI & AAS. We hoped to get the test done here in the UK but this isn't possible as they can only test the forward and back movement of the neck and not the left and right. Therefore, we would need to go to Barcelona for this but would only be able to if the target is met.

We want to get Stacey the help, support and advice she needs and deserves to hopefully help her get better and to be able to enjoy her life again. At the moment given all the symptoms and pain she is in, she purely exists. Stacey herself has said she doesn't want to live another year like this never mind 5, 10, 20+.

As a family it has been hard seeing Stacey suffer for so many years. It has been such a difficult time. In January this year we were hit with another blow as Stacey's dad, my husband, was diagnosed with prostate cancer. He is just 54 years of age and the prostate cancer has spread to is bones and is therefore incurable. I now have two poorly people to care for. All he and all of us would like is to see Stacey better.

Can you help? Every donation, no matter how little will help!

To keep up to date with Stacey's story, follow us on Facebook. We post updates and photos. You can also send us messages, ask questions etc and we will always reply.

www.facebook.com/helpforstacey

*We do have a go fund me account too along with PayPal and the option to make direct donations too, this is to give everyone a choice about how they donate should they wish*

Please share, #helpforstacey become a #staceysuperstar

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Updates

8

  • Bernadette Parker1 month ago
    Bernadette Parker

    Bernadette Parker

    1 month ago

    Thank you to all your kind support and donations so far Stacey has; 1) Been able to have her upright MRI and have it reviewed by a specialist in Barcelona (Stacey now has the diagnosis of Atlantoaxial Instability & Subluxations) 2) Been able to see the Geneticist and obtain his opinion and have bloods taken. 3) Stacey will hopefully be able to get to Barcelona for a digital motion x-ray and have a consultation with the specialist in Barcelona. We are still fundraising as we don't know what other expenses/hurdles we will come across.

    Share this update to help us raise more

  • Bernadette Parker2 months ago
    Bernadette Parker

    Bernadette Parker

    2 months ago

    Once all the tests are done & we have the results we can ultimately plan the next steps in the #helpforstacey journey. Ultimately we want to enable Stacey to get her life back, have a quality of life, have a purpose... everything Stacey deserves! Someones health, someones life, someones future should never have a cost associated to it... its a shame finances come into play in order to help someone get the tests, help & support they need to get better. Can you help Stacey? Please donate Part 3

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  • Bernadette Parker2 months ago
    Bernadette Parker

    Bernadette Parker

    2 months ago

    We really hope that funds we already have will also stretch far enough to cover the cost of the return trip to London too (when we need to get the test results), although probably dependent on the costs of the tests. Then the next step is getting to Barcelona! We probably need around £3,000 to do this comfortably & have some additional funds in case of an emergency etc. Part 2

    Share this update to help us raise more

6 months ago

Bernadette Parker started crowdfunding

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Page last updated on: 6/8/2019 17.11

Supporters

1053

  • Angela B

    Angela B

    Jun 8, 2019

    Best wishes

    £30.00

  • Amber Clarke

    Amber Clarke

    May 30, 2019

    £10.00

  • Debbie Leech

    Debbie Leech

    May 30, 2019

  • Anne Wood

    Anne Wood

    May 29, 2019

    £20.00

  • anthony beynsberger

    anthony beynsberger

    May 28, 2019

    Great job AndrewHope you raise more than you asked for..👍TonyB

    £50.00

  • Stace.C.

    Stace.C.

    May 23, 2019

    £10.00

  • Gavin Simpson

    Gavin Simpson

    May 19, 2019

    Great cause Andrew - well done!

Bernadette Parker

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About the fundraiser
Bernadette Parker

Bernadette Parker

Rochdale, UK

I am raising funds so that my Daughter, Stacey can hopefully get better after 3 years of serious illnesses and complications

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