Weʼve raised £40 to Help support Ben and his family as they battle to deal with life with Duchenne Muscular Dystrophy
- Hythe, Southampton, Hampshire, England
- Children and youth
- Time left
- Funded on Tuesday, 7th November 2017
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The page owner is responsible for the distribution of funds raised.
Ben is nearly 11 years old and lives in Hythe, in the New Forest.
Ben has Duchenne Muscular Dystrophy, a life limiting, muscle wasting disease.
Ben's muscles are slowly failing him. They will continue to fail him and his condition will progress until he is no longer able to use any of his muscles.
Ben's life will be cut short as a result. Just this week a member of the Duchenne community died, he was 11 years old.
There is no cure for Duchenne, we can not fix Ben but we can make his, and his family's lives easier.
Ben will need equipment and support that the NHS cannot fund. This is where we step in x
Updates appear here
Holly Mann started crowdfunding
Leave a message of support
Oct 3, 2017
Hi Holly I received an email from a work colleague and I would like to donate. My 8 year olds son's best friend also suffers with this condition along with his 8 year old brother. All the best xx
Sep 27, 2017
Bounce, bounce, bounce.
Sep 9, 2017
Holly You are doing amazing! Well done! Fantastic cause!
Claire Le Bas
Sep 7, 2017
Well done for organising another fundraiser for very special children. You are wonder Woman! Please Reserve the Le Bas family one trampoline on the 30th September. Thanks x
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About the fundraiser
Hythe, Southampton, Hampshire, England
I'm Holly, a 30 something year old mum of two children, 2 dogs and 2 cats! I work full time in a school and teach Boogie Bounce in the evenings. Oh and I like to run! I am running 8 marathons in 2017 to raise funds for #ForBenForAll
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