Weʼre raising £5,000 to help fund a wet room/bedroom plus medical equipment for a bedbound 17 year old girl with a rare condition called CPRS
- Cambridge, UK
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
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My friends daughter Jessica Gray has had a rare condition called Chronic Regional Pain Syndrome for the last 7 years .This is where her nervous system miss fires the nerve message and the skin of the body is so sensitive that the slightest touch can provoke intense pain .A single touch such as even a drop of water feels like a stab and causes Jess to fall unconscious and screaming in pain. Using the Mc Gill pain indict which doctors use to measure pain, CRPS scores the highest, even higher than cancer and childbirth. This is something that will never get better unfortunately.
Her house is in the process of being adapted for her continuing health changes she needs a wet room and a hoist on a track so she can gain some independence and at least be able to wash herself . Can you imagine how important that is to a young lady
At the moment all here clothes are in a box in the lounge which doubles as her bedroom so conditions are very cramped she would love to have wardrobes that are accessible so she can see her clothes and choose what she would like to wear that day . Such a simple thing that we all take for granted would mean so much to her.
I am taking part in a White Collar Boxing event on 15th September to raise money to help this wonderful family to get some normality back in their lives . I have never boxed before and think at age 51 its a little late to start but this is something I will be doing and my fight will be nothing compared to the one that Jess and her family take on every minute of every day .
So I am asking for any donations however small to help me help this young lady get some privacy and dignity back in her life.
thanks for reading this and helping if you can.
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Aug 14, 2018
It was lovely meeting Jessica and Hannah yesterday!
Jul 19, 2018
I hope all your friends are able to donate Ian, and Jess gets what she needs xx
Jul 12, 2018
Well done Ian, hope they match you with someone similar on the night!
Jul 9, 2018
Good luck and best wishes to Jessie x
Jul 9, 2018
Jul 8, 2018
It's wrong you have to pay for this but I hope you reach your target soon and it makes life a bit easier xx
Jul 8, 2018
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