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Iona's Inspiration raised £4,112 from 183 supporters
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Closed 07/10/2017
Weʼve raised £4,112 to Iona's Inspiration
- Cheltenham, United Kingdom
- Funded on Saturday, 7th October 2017
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Story
Hi,
This is Iona, aged 9, born with the life limiting condition Cystic Fibrosis, she was diagnosed aged 5 weeks.
Cystic Fibrosis is a genetic condition with affects the lungs and digestive system which unfortunately means she has a very limited life expectancy.
Iona is a cheeky, fun loving, sparky little girl who makes the most of life despite her physical limitations. Her days consist of hours of physiotherapy and medication to keep her well.
In June 2017 Iona's lung function dropped to its lowest at 51%. After some intensive treatment it was decided that an oscillation vest would help. Iona borrowed a vest from the Bristol Childrens' Hospital, there are only a few of these available, and after using the vest for a week Iona's lung function improved to 75%. The vest has now had to be returned to the hospital to help other poorly children.
We, "Iona's Inspiration", which is made up of friends and family of Iona, would like to raise £8,000 to buy Iona a vest of her own, which hopefully will reduce the risk of further damage to her lungs and prolong her life expectancy and quality of life.
Please, please help us buy Iona a vest by making a donation, however big or small, and keeping Iona smiling for longer. Thank you.
Update 15th September 2017: Iona’s family, friends and community have pulled together and very nearly raised the £8000 required for an air pump and oscillation vest. We are increasing our target to £16000 to ensure that Iona’s future needs are secure. This will include the larger vests Iona needs as she grows and, a warranty for the air pump and a small amount of money towards maintenance of the equipment until Iona is 16. All remaining monies will go to Bristol Children’s Hospital Physiotherapy department to help other CF children and their families.
For more information about Cystic Fibrosis:(https://www.cysticfibrosis.org.uk/what-is-cystic-fibrosis)
Updates
17
- 7 years ago
Iona's Inspiration
7 years ago#GBBO style (Iona's favourite program) Take: 4 ladies and one 9 yr old CF child. Add: 1 school, 100's of friends & family, 1 amazing community and simmer gentle for 21 days. Result: Over £9k, an Oscillation vest and one slightly bewildered 9yr old. I think this deserves a Paul Hollywood handshake✋ Celebrate with us and continue our fundraising at Iona's Jump-a-Thon on Thursday 19th October. Details on out facebook page
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- 7 years ago
Iona's Inspiration
7 years agoAn exciting day for Iona. Her Oscillation vest arrived today. This is a loan vest, a recommendation by the supply company to ensure it is the most appropriate equipment for Iona. This allows us to continue our fundraising efforts to ensure that her needs, with regards to the vest, are met until she is 16. Come and celebrate with us at Jumptastic on Thur 19th Oct🎉
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- 7 years ago
Iona's Inspiration
7 years agoFor those of you that missed our exciting news on the radio today... We have ordered Iona's Oscillation vest and it will be with her this week. We are continuing to raise money to secure Iona's future with larger sized vests and maintenance for the air pump. All remaining money raised will help other children with CF through Bristol Children's Hopsital Physio Department.
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Supporters
183
Fiona Madigan
Oct 5, 2017
Well done Iona - hope your new suit helps you lots xx
£10.00
Jane Hughes
Oct 3, 2017
Well done to Emma Sollis for running Cheltenham Half !
£5.00
Sharon Heeley
Oct 2, 2017
£10.00
Avice Godsell
Oct 2, 2017
Nanny of Erin and imogen at Severn Valley
£2.00
Emma Brazier
Sep 30, 2017
ECH. Go go go Emma! Run like the wind 😄 Best of luck to you tomorrow, and to Iona's Inspiration. Love from Emma, Karl, Caitlin and Annabel xxx
£20.00
Robin Wilson
Sep 29, 2017
DSH You are an inspiration, very brave.
£50.00
N Jones
Sep 28, 2017
DSH - Good Luck Danielle with the Stroud Half and with raising the money for Iona xx
£10.00
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Iona's Inspiration
Cheltenham, United Kingdom
Iona's Inspiration would like to raise £8000 to buy Iona an oscillation vest. Hopefully it will reduce the risk of further damage to her lungs and prolong her life expectancy and quality of life. Target increased to £16k on 15Sept to ensure that Iona’s future needs are secure.