Instead of Christmas gifts or cards this year we would be so grateful if the money could go towards Ivy's therapies / equipment / sensory needs instead. Ivy is a beautiful little girl, battling two very rare genetic disorders. She has GABRG2 developmental and epileptic encepholopathy type 74 and 16p13.11 microdeletion syndrome. When ivy was born she was seemingly perfectly healthy, but as time went on she began battling seizures, feeding tubes and severely delayed development. At 5 months old she developed absence seizures and at 7 months old had an NG tube fitted due to severe weight loss and failure to thrive after choking on food and milk. She was then deemed to be visually impaired after numerous tests and was diagnosed with yet another very rare disorder, ocular motor apraxia which causes Ivy to thrust her head continuously in order to see. Over the last two years she has been diagnosed with myoclonic and focal epilepsy, moderate-severe learning disabilities, among other diagnoses - which will never define her!

Anything you can spare will go towards therapies Ivy desperately needs, including therapies not available on the NHS. We are so grateful for every penny and every share. Thank you so much for listening to Ivy's story.