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£2,401raised of £3,000 target by 78 supporters

Weʼre raising £3,000 to Help fund £2500 for (QRI) cold laser therapy equipment.

Swansea, United Kingdom

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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Story

Hi, my name is Chris Newton-Sealey and I have entered several events this year to help raise funds and awareness. Please follow my son's Facebook page for more info on what events I've entered (Jace's Journey with NKH) and please sponsor me and help reach my goal!

Jace is 9 months old, and was diagnosed with an incurable genetic metabolic condition- Non Ketotic Hyperglycinemia (NKH) a week after birth. Its been a rough ride of seizures, hospital visits, developmental delays and end of life care.

We were told originally Jace was unlikely to survive, but Jace is proving doctors wrong and is fighting so we want to give him the best chance.

Recently, we've come across a treatment which have proven to have outstanding results in other children with NKH. We hope that with it, Jace will have a chance at hitting some of those developmental milestones we've missed (like head holding, sitting, and if we're really getting our hopes up, walking and talking).

The treatment is called Quantum Reflex Integration with Low Level Laser Therapy. It's done at home, and requires the purchase of a laser (which costs up to £2500). This treatment will hopefully help with some of those developmental issues.

This treatment is not available on the NHS.

We know we're asking a lot, but we can't afford this treatment out of pocket. It's hard to see other children having success with these treatment able to do the same for Jace.

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Updates

7

  • Chris Newton-Sealey PT9 hrs ago
    Chris Newton-Sealey PT

    Chris Newton-Sealey PT

    9 hrs ago

    Finished the FanDance today, not to late to show support 😊👍💪 next event is the Cardiff 10k in September.

    Update from the Page owner

    Share this update to help us raise more

  • Chris Newton-Sealey PT1 month ago
    Chris Newton-Sealey PT

    Chris Newton-Sealey PT

    1 month ago
    Update from the Page owner

    Thank you everyone.. can't believe we just hit 50% 😊😊🤗😁😀👍

    Share this update to help us raise more

  • Chris Newton-Sealey PT2 months ago
    Chris Newton-Sealey PT

    Chris Newton-Sealey PT

    2 months ago
    Update from the Page owner

    Share this update to help us raise more

6 months ago

Chris Newton-Sealey PT started crowdfunding

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Page last updated on: 6/24/2018 6:49 PM

Supporters

78

  • Sian Sealey

    Sian Sealey

    Jun 13, 2018

    Money raised with thanks to Ty Nant nursing home ❤️

    £136.00

  • Rachel Margetts

    Rachel Margetts

    Jun 4, 2018

    Lots of love 😘

    £20.00

  • Kristina Ciegyte

    Kristina Ciegyte

    Jun 1, 2018

    Hello, I hope it will help at least a little bit. My heart is with you and your baby and I hope everything will get better. From Mantas and Kristina

    £100.00

  • Zoë Sinclair

    Zoë Sinclair

    May 31, 2018

    £10.00

  • A Finch

    A Finch

    May 26, 2018

    Here's hoping you get enough for equipment needed xx

    £20.00

  • Alex Milne

    Alex Milne

    May 26, 2018

    Hope you raise your target

    £20.00

  • Darrell George

    Darrell George

    May 26, 2018

    £20.00

About the fundraiser
Chris Newton-Sealey PT

Chris Newton-Sealey PT

Swansea, United Kingdom

My son Jace has a condition called NKH and epilipsey. Which causes sezuries and development delays, and I want to give him the best chance of life I can.

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