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Chris Newton-Sealey PT raised £2,416 from 81 supporters

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Closed 27/07/2018

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£2,416raised of £3,000 target by 81 supporters

    Weʼve raised £2,416 to Help fund £2500 for (QRI) cold laser therapy equipment.

    Swansea, United Kingdom
    Funded on Friday, 27th July 2018

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Story

    Hi, my name is Chris Newton-Sealey and I have entered several events this year to help raise funds and awareness. Please follow my son's Facebook page for more info on what events I've entered (Jace's Journey with NKH) and please sponsor me and help reach my goal!

    Jace is 9 months old, and was diagnosed with an incurable genetic metabolic condition- Non Ketotic Hyperglycinemia (NKH) a week after birth. Its been a rough ride of seizures, hospital visits, developmental delays and end of life care.

    We were told originally Jace was unlikely to survive, but Jace is proving doctors wrong and is fighting so we want to give him the best chance.

    Recently, we've come across a treatment which have proven to have outstanding results in other children with NKH. We hope that with it, Jace will have a chance at hitting some of those developmental milestones we've missed (like head holding, sitting, and if we're really getting our hopes up, walking and talking).

    The treatment is called Quantum Reflex Integration with Low Level Laser Therapy. It's done at home, and requires the purchase of a laser (which costs up to £2500). This treatment will hopefully help with some of those developmental issues.

    This treatment is not available on the NHS.

    We know we're asking a lot, but we can't afford this treatment out of pocket. It's hard to see other children having success with these treatment able to do the same for Jace.

    Updates

    9

    • Chris Newton-Sealey PT2 months ago
      Chris Newton-Sealey PT

      Chris Newton-Sealey PT

      2 months ago
      Update from the Page owner

      Share this update to help us raise more

    • Chris Newton-Sealey PT2 months ago
      Chris Newton-Sealey PT

      Chris Newton-Sealey PT

      2 months ago

      Just signed up for this 👍😂🙈 got another end of August as well 🙈 please if possible show support by donating we are so close to target 👍😊

      Update from the Page owner

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    • Chris Newton-Sealey PT3 months ago
      Chris Newton-Sealey PT

      Chris Newton-Sealey PT

      3 months ago

      Finished the FanDance today, not to late to show support 😊👍💪 next event is the Cardiff 10k in September.

      Update from the Page owner

      Share this update to help us raise more

    9 months ago

    Chris Newton-Sealey PT started crowdfunding

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    Page last updated on: 7/26/2018 1:01 PM

    Supporters

    81

    • Anonymous

      Anonymous

      Jul 16, 2018

      With love x

    • Binder Davies

      Binder Davies

      Jul 16, 2018

      Just a little something towards helping Jace x

      £5.00

    • Anonymous

      Anonymous

      Jul 7, 2018

      £5.00

    • Sian Sealey

      Sian Sealey

      Jun 13, 2018

      Money raised with thanks to Ty Nant nursing home ❤️

      £136.00

    • Rachel Margetts

      Rachel Margetts

      Jun 4, 2018

      Lots of love 😘

      £20.00

    • Kristina Ciegyte

      Kristina Ciegyte

      Jun 1, 2018

      Hello, I hope it will help at least a little bit. My heart is with you and your baby and I hope everything will get better. From Mantas and Kristina

      £100.00

    • Zoë Sinclair

      Zoë Sinclair

      May 31, 2018

      £10.00

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    About Crowdfunding
    About the fundraiser
    Chris Newton-Sealey PT

    Chris Newton-Sealey PT

    Swansea, United Kingdom

    My son Jace has a condition called NKH and epilipsey. Which causes sezuries and development delays, and I want to give him the best chance of life I can.

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