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Jae Long raised £1,415 from 21 supporters.

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Closed 20/09/2017

101%
£1,415raised of £1,400 target by 21 supporters

    Weʼve raised £1,415 to Help fund a Radio Aid For Kacie-Rae

    Location
    Brighton, United Kingdom
    Time left
    Funded on Wednesday, 20th September 2017

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    Story

    hi everyone il put up a brief description as to why we have started this fundraising page , Kacie-Rae was born with a abnormal afterbirth and was immediately rushed to Trevor Mann after she was born , after 3 days on a cool mat she finally made it through and started to get stronger by the day , however after she started to get better we was told the bad news , Kacie-Rae was deaf , after a lot of soul searching by all the family we came to terms with her illness but we all knew it wasn't going to be easy but we got on and did the best we could , but as you can imagine a lot of time was dedicated to her and all the appointments at ear nose and throat, audiology and other appointments there really has been to many to count , after lots and lots of appointments and specialist we found out that her hearing will not get any better infact it will get only worse as she gets older , we were told that that the problem started with what they call connection 26 in brief there is part of Kacie-Raes ear drums that she simply just doesn't have , but this was a gene that was carried by both mother and farther , the gene on its own isn't a problem but when two people have it and it comes together that is when it becomes a connection 26 and this is what Kacie -Rae has got , she has got hearing aids but she still struggles but if you know Kacie she always trys her best she does amazing lip reading but this doesn’t always work if you out and about in crowed places ECT so when she started school we got introduced to a Radio Aid this is basically a microphone that you wear and she has the transmitters attached to her hearing aids this gives her a direct feed from your voice straight to hearing aids it blocks out all background noise this does cost a lot of money but will benefit her in the long term , but we simply cannot afford it and its not available on the NHS , so we thought we would give this a go and see if we cant help raise what is needed to get this vital equipment for her.

    Updates

    5

    • Jae Long7 months ago
      Jae Long

      Jae Long

      7 months ago

      Once again thank you so much to each and every one of you from the bottom of my heart.. Xxx

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    • Jae Long7 months ago
      Jae Long

      Jae Long

      7 months ago

      We seriously ate overwhelmed right now we can't thank you all enough and to that Anonymous person for donating a huge amount we can't thank you enough. Thank you so much you don't even know what this will mean for Kacie-Rae.... XXXXXXXX

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    • Jae Long7 months ago
      Jae Long

      Jae Long

      7 months ago

      Kacie-Rae does Martial Arts this is just one example of how this Raido Aid helps her. She has Martial Arts every Monday which is in a huge hall with other activities going on throughout the session and she never moans even though she can only reply on the watching what other people are doing or lip reading but once again she gives 100% if not more But yesterday her instructor used the Radio Aid for the 1st timed and it was unbelievable, she was more focused, more alert just a differernt child... This is what her instructor wrote.

      Update from the Page owner

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    7 months ago

    Jae Long started crowdfunding

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    Supporters

    21

    • Mark Jarvis

      Mark Jarvis

      Jul 30, 2017

      £10.00

    • Kim Dainty

      Kim Dainty

      Jul 29, 2017

      £10.00

    • Natalie Stevens

      Natalie Stevens

      Jul 29, 2017

      Such an incredible young and she amazes me everyday xx

      £10.00

    • Claire Lambert

      Claire Lambert

      Jul 29, 2017

      Your deserve this my little friend.. x

      £10.00

    • Anonymous

      Anonymous

      Jul 29, 2017

      £1,000.00

    • June  Upton

      June Upton

      Jul 27, 2017

      £30.00

    • Louise Scammell

      Louise Scammell

      Jul 27, 2017

      £10.00

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    About Crowdfunding
    About the fundraiser
    Jae Long

    Jae Long

    Brighton, United Kingdom

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