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Closed 30/12/2022

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£15,823
raised of £500 target by 476 supporters

    Weʼve raised £15,823 to help fund stroke research at the UCL Institute of Neurology

    Funded on Friday, 30th December 2022

    Don't have time to donate right now?

    Story

    On 28th January 2021, our wonderful Jamie passed away. The previous day, without warning or any symptoms, Jamie fell unconscious at home, and his breathing and heart stopped. His partner Lucy performed CPR and with the help of the paramedics his heart started beating again after 35 minutes. He was taken to hospital and was well cared for in intensive care until it was confirmed that the damage to his brain was irreversible and he would not recover. His loved ones were able to stay with him until the end.

    Jamie had a spontaneous subarachnoid haemorrhage, a type of stroke, where bleeding occurs in the brain. This is caused by the rupture of an aneurysm, which is a swelling of one of the brain’s arteries due to a weakened blood vessel. Half of the people with a subarachnoid haemorrhage do not survive, and the half of those who do are left with long-term significant disability. For Jamie, this was an entirely unforeseen event that has shocked and devastated all who loved him.

    Jamie was a fit, healthy and happy 31 year old with no major medical problems. He loved life, his girlfriend, his family and his friends. He loved snowboarding, gaming, festivals, history and had dreams of travelling the world, continuing a successful career in software development, getting married and starting a family.

    Around 4% of the population have a brain aneurysm, but they are often undetected as they are largely symptomless and there are no screening programmes available to identify them. It is not fully known why some people with brain aneurysms then go on to develop a subarachnoid haemorrhage. This rarely happens but if it does it is often too late for intervention. If an aneurysm is detected early, it can be monitored with the option for surgical intervention to prevent it rupturing.

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    Professor of Neurology David Werring works with a research team based at UCL Queens Square Institute of Neurology. One focus of their research aims to understand how and why aneurysms develop and rupture, and what can be done to improve outcomes and recovery. The team recently led the UK contribution to an international study identifying at risk areas of the genome linked to brain aneurysms (link below).

    Their current projects include further research into the genetic variants found in those with aneurysms, the risk factors for their rupture, and factors related to recovery after a subarachnoid haemorrhage.

    By supporting their research you will be helping to better understand this devastating disease, with the aim to one day be able to prevent wonderful, young lives like Jamie's being taken so early and so tragically.

    With huge thanks for whatever donation you are able to make.

    UCL Stroke Research Group Page

    Article explaining recent study

    Recent study by team into Genetics of brain aneurysms

    Updates

    1

    • Jamie's Family 3 years ago
      Jamie's Family

      Jamie's Family

      3 years ago
      Update from the Page owner

      Share this update to help us raise more

    3 years ago

    Jamie's Family started crowdfunding

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    Page last updated on: 8/23/2022 20.33

    Supporters

    476

    • Katherine Barwell

      Katherine Barwell

      Aug 23, 2022

      Raised from Ride London charity page. Thanks to everyone that donated!

      £328.00

    • Darcy Miles

      Darcy Miles

      Jan 20, 2022

      Hoping this small amount helps. Sending my love x

      £10.00

    • Dominique Pardon-Opdam

      Dominique Pardon-Opdam

      Dec 21, 2021

      Remembering Jamie with love 💙

      £50.00

    • Henry King

      Henry King

      Jun 19, 2021

      £20.00

    • Harry Wynne-Williams

      Harry Wynne-Williams

      Jun 18, 2021

      RIP James and here’s to preventing this awful condition.

      £20.00

    • Gayle Gander

      Gayle Gander

      Jun 1, 2021

      With love

      £20.00

    • Anonymous

      Anonymous

      May 18, 2021

      £20.00

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