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Jen Godwin raised £788 from 40 supporters
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Closed 05/10/2017
Weʼve raised £788 to Help towards getting Hettie the new mobility equipment she needs to make life with SMA 2 easier
- Cardiff, United Kingdom
- Funded on Thursday, 5th October 2017
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Story
I am running Cardiff Half Marathon (13.1 Miles) on Sunday the 1st of October.
I am asking for sponsorship to raise money towards new mobility equipment for Hettie.
Hettie is three and lives on the outskirts of Caerphilly in Nantgarw. She has a twin sister called Evelyn and two cats called Lina and Leui.
Hettie also has a condition called Spinal muscular atrophy type 2 (SMA II) SMA affects the muscles in the entire body.
The weakness starts centrally and works outwards. Without a cure Hettie will never walk and will only get weaker. So far for hettie, SMA has meant she has lost her ability to sit and roll, she cannot walk and her spine has started to curve, she has respiratory problems and is fed via a tube as the muscle weakness has caused her to lose her swallow.
SMA is a lifelong condition and is life limiting, we have no idea how long Hettie has on this earth. Some children with Type 2 can live long into their adult years and this is the hope for Hettie.
Hettie's family want to make her life as easy as possible, providing her with the best equipment.
Some help is available off the NHS however anything extra to give Hettie a better quality of life would be a big help to the family.
If you would like to donate to Hetties' fund then please do so, any amount is so gratefully received and will only go towards medical equipment and expenses.
The family are looking to buy a panthera bambino wheelchair which weighs only 5kg which will be light enough for her to propel herself giving her the most independence.
You can follow her story on facebook - www.facebook.com/hettievssma2
Updates
8
- 7 years ago
Jen Godwin
7 years agoShare this update to help us raise more
- 7 years ago
Jen Godwin
7 years agoShare this update to help us raise more
- 7 years ago
Jen Godwin
7 years agoShare this update to help us raise more
Jen Godwin started crowdfunding
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Supporters
40
Emma Catton
Oct 1, 2017
Super proud of you today.. your dedication has been amazing!! I hope you smash it today! Have fun. Lots of love Emma Xx
£20.00
Emma Lewis
Sep 30, 2017
You are going to smash this! Beyond proud of you hun xx
£10.00
wendy & maureen
Sep 29, 2017
Good luck Jen for this weekend! I'm sure you'll do wonderfully well -and a great cause too to keep you going when the knees start to ache xxx
£50.00
Jodie Stephens
Sep 28, 2017
Good luck !!!
£5.00
Bethan Lawrence
Sep 28, 2017
Good Luck Jan Godwin proud of ya buddy
£10.00
Sophie Odegard
Sep 28, 2017
Good Luck Jen!
£10.00
Nikki Swift
Sep 28, 2017
£5.00
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About CrowdfundingAbout the fundraiser
Jen Godwin
Cardiff, United Kingdom
I have been running for 18 months, starting off with the Couch to 5k Programme. I have gradually built up my distance since then and I have completed 5 & 10k races. I am 30 in September and wanted a personal challenge.