staceys story...

We are trying to raise money for our son Toby to fund treatment & help him make memories & try and have fun times during his Neuroblastoma Journey ... At Christmas Toby became unwell, we took him to the doctors where we were told that he had a virus and he would be ok in a couple of days, however Toby became more ill and was so weak he was unable to walk. We took him to A&E and on the 6th of January on Toby's 4th birthday we were given the devastating news that Toby had stage 4 Neuroblastoma we were absolutely devastated we didn't know what to do. Toby had gone from a very active little boy to being unable to move without help. We were told that Toby would need intense Chemotherapy & Radiotherapy as well as an operation to remove the main tumour on his kidney, we were told that the treatment would last at least a year and it will make him very ill. Toby has a big brother Ollie who is 6 years old and a baby sister Sienna who was 4 months at the time (now 10 months) we are very busy trying to balance home life as well as a life in hospital. We need to raise money for Antibodies & other treatment that maybe needed, Toby was on a trial where he would receive antibodies on the NHS however because treatment hasnt worked as expected & Toby requires extra treatment he can no longer continue on the trial so we now have to pay for antibodies which will cost £200,000 we are absolutely devastated. We may so need to travel abroad for treatment if the treatment in the UK still doesnt work.