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Jenny Croce raised £1,080 from 35 supporters
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Closed 22/12/2018
Weʼve raised £1,080 to To help support Florence in her battle with a life limiting rare genetic condition GM1 and to allow her to make special memories ❤️
- Funded on Saturday, 22nd December 2018
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Story
Florence is 3 years old and last year with diagnosed with a heartbreaking life limiting comdition called late Infantile GM1. The condition will slowly take her ability to crawl, babble and swallow. The condition will take her life around the age of Ten. The condition has already taken her ability to walk and talk. We have achieved so much in the past year and have been supported by many amazing people doing incredible things for Florence. In october we were priviledged to travel to America to meet another family of a little girl with the same rare condition. We also met Drs doing groundbreaking research into s cure.
It really is a race against time for Florence. We are supporting the Cure GM1 foundation in America who are fighting everyday to find a cure. With your help this one day could be a reality and save Florences life. Every single penny will make Florences life the best it can be and will help support the work going on to help save all children who are suffering. Thank you for your support.
Jenny (Florences Mum)
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Supporters
35
Annas Eskander
Aug 19, 2018
Thank you for sharing your journey with us. It’s really humbling and remember your strength is an inspiration to us all. Love, Annas xxx
£100.00
Ewa Jaworska-Borsley
Jul 28, 2018
With best wishes for Florence and her loving Family from Bob and Ewa
£30.00
Anonymous
Jul 27, 2018
£20.00
Claire east
Jun 8, 2018
Well done phil and adam on climbing scarfell pike from claire and friends
£100.00
Iona Varol
May 30, 2018
Best of luck phil, and such a lovely thing to do to help Jenny love Iona (and family) Bruce (and family) and Tony, hope the weather is good for you xx
£300.00
Karen Snelson
May 29, 2018
£20.00
Anonymous
May 29, 2018
£30.00
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