Weʼre raising £1,000 to To help support Florence in her battle with a life limiting rare genetic condition GM1 and to allow her to make special memories ❤️
- 8 days to go
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Florence is 3 years old and last year with diagnosed with a heartbreaking life limiting comdition called late Infantile GM1. The condition will slowly take her ability to crawl, babble and swallow. The condition will take her life around the age of Ten. The condition has already taken her ability to walk and talk. We have achieved so much in the past year and have been supported by many amazing people doing incredible things for Florence. In october we were priviledged to travel to America to meet another family of a little girl with the same rare condition. We also met Drs doing groundbreaking research into s cure.
It really is a race against time for Florence. We are supporting the Cure GM1 foundation in America who are fighting everyday to find a cure. With your help this one day could be a reality and save Florences life. Every single penny will make Florences life the best it can be and will help support the work going on to help save all children who are suffering. Thank you for your support.
Jenny (Florences Mum)
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Aug 19, 2018
Thank you for sharing your journey with us. It’s really humbling and remember your strength is an inspiration to us all. Love, Annas xxx
Jul 28, 2018
With best wishes for Florence and her loving Family from Bob and Ewa
Jul 27, 2018
Jun 8, 2018
Well done phil and adam on climbing scarfell pike from claire and friends
May 30, 2018
Best of luck phil, and such a lovely thing to do to help Jenny love Iona (and family) Bruce (and family) and Tony, hope the weather is good for you xx
May 29, 2018
May 29, 2018
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