Weʼve raised £130 to Plymouth 10 K to raise money for Fynn to take his first footsteps...
- Children and youth
- Time left
- Funded on Thursday, 28th September 2017
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I am running the Plymouth 10 K on October the 8th aid of my little cousin Fynn who needs a life changing operation. Here is his story...
Fynn is two years old and an identical twin born in August 2014 along with his brother Leo at 30 weeks with twin to twin transfusion. Fynn weighed just 3.5lb and his Leo 1.7lb. They fought for their lives for 2 months and were able to leave the hospital in time for their first Christmas.
It became apparent by the age of one that Fynn was not reaching his milestones and was still unable to sit, crawl or support himself in anyway. Finally it was confirmed sadly that Fynn had Spastic Cerebral Palsy. This makes Fynn's muscles stiff and his movements jerky. His increased muscle tone can make movements difficult, sometimes impossible. Fynn does not sleep at night due to painful muscle spasms which is alleviated slightly by medication but he still needs turning over from where he is just too exhausted. This quite often leaves him very tired and aching the next day and the cycle begins again.
Fynn is not able to support himself at all therefore a lot of equipment is required for him to participate in activities with others in nursery, out and about and at home. Fynn's frustration propels him to keep up with his twin brother and the determination has enabled him to achieve small steps like holding a fork and spoon in his own way. Something we perhaps all take for granted.
In May2017 we met with consultants at Bristol Royal Childrens Hospital to see if Fynn was a suitable candidate for Selective Dorsal Rhizotomy (SDR). SDR is the dividing and cutting of nerves in the spinal cord. We were told that he was an excellent candidate. This operation would mean that most of his painful spasms would cease and that this would lead to him hopefully walk unaided. The fall then came that it is not currently funded on the NHS.
Please can you help us to fund his operation, the current cost is around £38,000. This would change Fynns life forever. As his parents it parents it is something we would make the ultimate sacrifice for, for Fynn to be able to walk with his brother.
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Jess Danby started crowdfunding
Leave a message of support
Sep 9, 2017
Go team jess !! Proud of you x
Sep 9, 2017
From a kind regular at Costa.
Sep 8, 2017
Good luck Jessie love Kath and Steve x
Aug 31, 2017
Good luck Jess xxx
Aug 31, 2017
Proud of you darling! Love you millions ❤️ Xxx
Aug 30, 2017
Good luck x
Abi Michelle Danby
Aug 29, 2017
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