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Rachael Ayre raised £100 from 8 supporters
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Closed 31/10/2017
Weʼve raised £100 to to lay our little boy to rest, raise awareness of cri du chat and make a donation to charity for cri du chat xx
- Glossop, United Kingdom
- Funded on Tuesday, 31st October 2017
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Story
So many of you won't know that I'm pregnant and there's a reason for that, we found out around 10weeks and went for a scan and some potential issues showed up and after our quad test came back it was clear something wasn't quite right, we were offered amniocentesis and an in depth scan which we accepted. This revealed that our baby (a little boy) had some problems with his brain and we were sent for an MRI, after this we also got our second lot of amniocentesis results (the first came back fine) this showed that our little boy has a rare syndrome called cri du chat as well as multiple other issues meaning he will have very severe disabilities and no real quality of life. We were informed he would have low life expectancy, multiple organ problems/failure, extreme difficulty feeding, will have very delayed speech and ability to walk if ever, be in a lot of constant pain and need regular hospital treatment and a lot of extra care. After discussions with the geneticist we have made the incredibly heartbreaking decision to terminate our pregnancy as we don't think it is fair that our baby continues to suffer as his condition is already deteriorating and we also don't think it is fair on Thomas and Lydia either, it is not something we have decided on lightly, we are absolutely devastated and we now just want to prepare ourselves to say goodbye and give him the best send off we can and that is where we are asking for your help. As I am just over half way in my pregnancy I have to give birth to our little boy and have to go through an awful ordeal in the process but we want to make sure he is remembered as an important part of our family and have a funeral to remember him and a place to visit with our family. Any help you can give will be very much appreciated and the more we raise the better as once the funeral is arranged we will make a donation to cri du chat awareness. xxx
Updates
3
- 7 years ago
Rachael Ayre
7 years agoAfter visiting the funeral directors yesterday talking about our options we have found that they offer their services for free and we just need to find the money for the plot, an adult plot is what we want so that when our time comes we can be with him. Total cost of an adult plot is £1281 without headstone so unfortunately we still have a long way to go before we can bury our baby boy :'-(
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- 7 years ago
Rachael Ayre
7 years agoOur beautiful little boy was born sleeping yesterday at 14:09 weighing just 1lb 2oz, he is perfect. I haven't been able to leave him yet, he has stayed by my side since birth and even now as I tell you about him. I know that it will be another hurdle in this awful time when later today I will be going home without him to his daddy, brother and sister but he will never leave our hearts and minds for a second, we love you Jesse and now you are no longer in pain xx xx
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- 7 years ago
Rachael Ayre
7 years agoThank you for all the support so far, tomorrow will be the start of an incredibly heartbreaking process, our little boys heart will be stopped and we begin to grieve. Feeling sick at the thought of it all knowing it will be his last living day :'( xx
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Rachael Ayre started crowdfunding
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Supporters
8
Rachael Ayre
Oct 9, 2017
Donated on behalf of Leonard Fletcher, Sam and Ann enser, thank you very much xx
£40.00
Anonymous
Oct 7, 2017
colette tipple
Oct 2, 2017
Devastating for all of you xx thinking of you all xx
Lucy
Oct 2, 2017
I'm so sorry you have to go through something like this. Hope this helps toward the costs for your little boy and donation for the charity.
£5.00
Steven
Oct 2, 2017
£10.00
Anonymous
Oct 1, 2017
I niscarried 2, losing a child is hard enough but I can't imagine the pain of having to bury a child. My thoughts are with you and your family. He'll be looking down knowing he was loved.
£15.00
Anonymous
Oct 1, 2017
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Rachael Ayre
Glossop, United Kingdom
Hi my name is Rachael, me and my partner jimmy have two children Thomas and Lydia. I'm pregnant but our little boy has a lot of problems and wouldn't have a very good life because of them so we've made the difficult decision to terminate and obviously we're heartbroken xx