24%
£1,220raised of £5,000 target by 53 supporters

Weʼre raising £5,000 to help my daughter Charlotte. Charlotte is 14 month old and suffers with Chronic Kidney Disease (Stage 5).

Time left
17 days to go

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Story

Charlotte's Story;

Charlotte was born 7/9/15, 5 weeks premature. At only 36 hours old she was separated from her mum who was herself kept in hospital due to complications at birth and transferred to a hospital over 2 hours away.

Charlotte was initially diagnosed with bilateral hydronephrosis and at only 5 days old underwent her first major life saving operation. It was at this point that Charlotte was also diagnosed with pulmonary stenosis, meaning a narrowing of the artery from her heart to her lungs, a condition which has now worsened.

Charlotte was then diagnosed with Chronic Kidney Disease Stage 5, and required urgent dialysis. She has since undergone life saving surgery a further 7 times.

Over the past 14 month Charlotte's condition has literally split and is continuing to split our tiny little family in two. Charlotte has spent the majority of her short life so far in hospital over 2 hours away with her mum Rachel, meaning she is away from her sister Emily who has suspected autism and her Dad John.

Rachel has had to give up work to become Charlotte's full time carer. Charlotte requires life saving medication to be administered every day and can only be fed via a tube into her stomach.

The picture on this page is of Charlotte taken on 31/10/16, 14 month old.

Charlotte attends hospital over 2 hours away for dialysis 3 times a week, every week of every month until she is big enough, strong enough and old enough to have a transplant.

We never fully appreciated how much her condition was going to affect our family. Financially it has hit us extremely hard as we never expected things to be so stressful and severe, as a young family we have financial commitments and debt like most do. Our home requires modifications and improvements to help make it a safe environment for Charlotte to play, grow and develop. We would really appreciate it if anyone could help us give Charlotte the things she needs.

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Updates

9

  • John Newton

    John Newton

    6 days ago

    John Newton

    Just to let everyone know, Charlotte is now home again! After another stressful couple of weeks we have our little family together again. We have hope that we will now all be together for Xmas and New Year, and that apart from the life saving dialysis visits which have to happen every week, that we don't have any more lengthy stays in hospital for some time. We have to now turn our attention to the changes we need to make to our home. Please help like + share Charlotte's story, every little helps us towards making the changes she needs.

    Tagged:

    • Rachel Newton

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  • John Newton

    John Newton

    12 days ago

    John Newton

    We would like to thank everyone who has kindly donated to our page, it is very much appreciated and welcomed, thank you all. We are trying where possible to modify our home to cater for Charlotte's growing needs, if people can help us either personally or via companies in where you work we would greatly appreciate it. So people are aware I have recently signed up to do the Great North Run 2017 and the London Marathon in 2018, I will be running these two events on behalf of British Kidney Patient Association (BKPA).

    Update from the Page owner

    Tagged:

    • Rachel Newton

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  • John Newton

    John Newton

    12 days ago

    John Newton

    This week Charlotte has had her 10th major operation which caught us by complete surprise. Many tears have been shed and it doesn't get any easier. Her stomach had managed to come to the outside of her body and needed to be put back inside. Thankfully I can say the surgery went well, Charlotte has a new feeding tube but is currently being starved for 48 hours, safe to say she is not happy. She has recently been published in the Nottingham Hospital Charity magazine and is fast becoming a very popular patient at the hospital.

    Update from the Page owner

    Tagged:

    • Rachel Newton

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a month ago

John Newton started crowdfunding

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Supporters

53

  • Stephen Carter

    Stephen Carter

    Dec 1, 2016

    £20.00

  • Jenny Taylor

    Jenny Taylor

    Nov 30, 2016

    Lots of love, from Jen Scott and the boys. X

    £10.00

  • Lee Robinson

    Lee Robinson

    Nov 30, 2016

    I know your story through my wife laura, I wish nothing but luck to your entire family!

    £10.00

John Newton

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John Newton

John Newton

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