Weʼve raised £100 to pay for life saving Brain and Spine surgery
- Hedge End, United Kingdom
- Funded on Thursday, 9th February 2017
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Hi everyone, my names Leah and this is my story. I am 34 and have a wonderful 12 year old daughter. I have a rare condition called Ehlers Danlos Syndrome (EDS) I need life saving surgery because my spine is unstable and crushing my brainstem. I cannot turn my neck without partially dislocating it and the bottom of my brain has come out of my skull into the spinal canal. The surgery I need is not done in the UK for EDS patients and I need to raise funds to go to Barcelona.
I have brainstem compression and in order to prevent further permanent neurological damage I need surgery to to make more space for my brain and to fuse my cervical spine. In order to prevent lower limb paralysis I also need to have lower spinal surgeries. The conditions I have are called Cranio Cervical Instability, Atlanto Axial Instability, Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome and others.
I have life threatening conditions and without these surgeries that the UK cannot provide I am living on borrowed time until the next thing happens. I need to get these surgeries to be there for my daughter. I have to achieve this, theres no other hope now. I already suffer from sublaxations, blood pressure and heart issues, facial swelling and numbness, electric shocks, insomnia, muscle weakness and so much more. I need your help to beat this and live.
The money raised will pay for surgery and the required hospital care in Barcelonas Hospital Teknon. Surgery for Ehlers Danlos Patients is generally not undertaken in the UK and is not offered for Cranio cervical fusion. It is only available in the USA or Barcelona. The cost to have surgery in the USA is approximately $150,000 for one part, so I am lucky to have the opportunity of surgery with Dr Gilete in Barcelona.
Your donations will help me to live and mean so much more than any words I can say but from the bottom of my heart, thank you. I will also post videos of me at the hospital before and after surgery so
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leah boxall started crowdfunding
Leave a message of support
Jan 18, 2017
Fingers crossed people will read your story and help acheive your goal...wishing you luck x
Dec 26, 2016
Praying for your good health!
Dec 7, 2016
Keep fighting lovey xxxx
Dec 6, 2016
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About the fundraiser
Hedge End, United Kingdom
Leah needs this surgery to live, she wants to watch her child grow up like any other parent. Please donate or do a sponsored event or help in anyway you can to save this womans life
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