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Lexy Barrable raised £1,160 from 21 supporters
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Closed 31/10/2018
Weʼve raised £1,160 to Help me get to Barcelona, for further testing and surgeries.
- Funded on Wednesday, 31st October 2018
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Story
Hello and thank you for visiting!
This journey started when my symptoms got worse, i suppose. My vision. Speech, headaches, spinal pain and intermittent partial paralysis have all gone down hill in recent months.
while I have been studying Law at Hertfordshire University, I have been lucky enough to see the generosity and kindness people have in them first hand. I am now, unfortunatrly, praying that there is some kidness towards me, as withoutmit, we do nit know how much longer Iwill be able to be at University or as independent as I am.
At the moment, my symtpms are wide amd varies, incouding partial paralysis that comes and goes as it pleases, tingling in my feet, i fall unconcious when i look down or to the side and up, my neck dislocates comstantly, the headaches and nausea are constant, and my eye sight vanishes frequently. I also experience tachycardia each time i eat anything.
i sent my images off to the doctor expecting him to suggest my symptoms were due to my soine and that i could do with a fusion, instead he used words like advance, press upon the urgency to have surfery, and progressive. I will only get worse.
The truth is, I might die before i raise the money , but at least I will have tried.
Lexy x
Updates
6
- 6 years ago
Lexy Barrable
6 years agoShare this update to help us raise more
- 6 years ago
Lexy Barrable
6 years agoThe first consult and round of testing is booked in for July 9th, meaning the balance and fundraising deadline for this leg of my journey is dueu on 25th June! Can we do it? You decide. My life is literally in your hands!
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- 6 years ago
Lexy Barrable
6 years agoThe game has changed, and so has the donation total,Dr G believes, from my scans, I need a Posterior Fossa Decompression surgery An occipital to T1 Fusion with interoperative traction. Laminectomy to reduce cervical stenosis. I have a roughly 50k which will be whittled down to definite figured, again once I get out there. If you can, please consider helping me get to Barcelona. Dr Gilete has said that without these surgeries, I will get worse. He has said that my case is advanced, and particularly concerning because of the progressive symptoms.
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Lexy Barrable started crowdfunding
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Supporters
21
Alyce Hunt
Jun 12, 2018
£20 each from Sean, Zophia and I. Sorry that we can't afford more <3
£60.00
Mily Riley
Jun 6, 2018
£10.00
AD Mester
Jun 6, 2018
Keep going Lexie stay strong during the dark days things will get better soon! Wishing you the best from me and Louise xx
£30.00
Anonymous
Jun 6, 2018
Anonymous
May 26, 2018
Good luck with everything. Sonia, a fellow EDS sufferer.
Anonymous
May 26, 2018
£400.00
Dawn Williams
May 26, 2018
Good luck ❤
£20.00
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