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Sean Johnson raised £910 from 48 supporters
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Closed 21/08/2019
Weʼve raised £910 to Support Luis Johnson suffering with a severe blood mutation, to help with recovery after operation.
- Funded on Wednesday, 21st August 2019
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Story
Luis has a severe blood disease and now has a second blood Mutation. Your help would be amazing, he has spent an awful amount of time in hospitals, your donation can give him a fantastic memory and help getting luis better.
If Luis has a crisis we know exactly where to go. He is now transfusion dependant and needs 2 units of blood every 4 weeks. Our next stage is Luis will now need operation to slow down red cells being destroyed. This will mean his immune system is weak and will be on daily medication for the rest of his life.
With all this going on and Luis' really low energy levels, he is unable to have the healthy energetic childhood we want for our children. We are trying to give him something to look forward to after surgery.
Our aim as a family is to raise a little bit Money to get Luis and his 2 sister a little break away from all the appointments and hospitals after surgery and let him escape reality for a few days. Its been really difficult 2 years financially, especially the last 12 months. Luis has really had a tough time, with all the pain, tests after tests, hospital is now like a second home. You donation will make a real change and will be this biggest positive in a negative situation.
We have had a lot of very supportive messages and very kind words. So I would ask any Friends, Family or caring individuals if you could help supports Luis and make things a little bit easier so we can fully concentrate on Luis' recovery and to give him something to look forward to, and help with the post surgery care with less financial problems.
All monies raised will go towards family needs and a break for Luis from all these appointments and treatments. A portion of the money given will be re-donated to Hospital Children wards which has helped us through Luis' journey against this rare Condition.
Thank you so much for visiting our page, one day Luis' will pay all this kindness forward. You can really put a big smile on Luis' world xx
Updates
13
- 5 years ago
Sean Johnson
5 years agoRash starting to clear, luis now has 6 belly buttons
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- 5 years ago
Sean Johnson
5 years agoPost Op. .
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- 5 years ago
Sean Johnson
5 years agoBit of a rough night, from walk in centre to childrens A & E. Got home around 1am. Luis has suffered some kind of reaction - taking off all antibiotics, got to get something sorted today. They are unsure whats happening. Waiting on a phone call for next steps. He is controlling the pain very well. Is up and walking small amounts. Very tired but is eating bits and drinking plenty. He has 5 small incisions about 4cm, then a bigger one about 10-15cm. They all have a protective glue on and stitches that dissolve. So no dressings that need removed.❤
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Sean Johnson started crowdfunding
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Supporters
48
Mary Greaves
Jul 13, 2019
Keep fighting Luis and get better soon! From Sue and Mary (Mary’s Pension campaign friends)xx
£25.00
Anonymous
Jul 7, 2019
Fingers crossed Luis recovers fast x
£10.00
Alan McBurnie
Jun 14, 2019
Love from Diane Mc
£15.00
Patricia Brackenridge
Jun 14, 2019
Best wishes Trisha x
£20.00
Anonymous
Jun 6, 2019
With love from Paula xx
£20.00
Christine Smith
Jun 4, 2019
£10.00
Anonymous
May 30, 2019
With love from Kirsty xx
£10.00
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Sean Johnson
Luis' is suffering from a rare severe auto immune disease. Spherocytosis was diagnosed in 2018, he now has a second blood mutation which we await results. Luis' is now transfusion dependant having 8 transfusions in past months. Luis is now needing 2 units of blood every 4 weeks.