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Shanel Edin raised £430 from 34 supporters

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Closed 09/07/2019

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£430
raised of £250 target by 34 supporters

    Weʼve raised £430 to Change special little girls life & enable her to have a Selective Dorsal Rhizotomy an operation.

    Funded on Tuesday, 9th July 2019

    Don't have time to donate right now?

    Story

    I am raising money for a special little girl called Malaya to have a Selective Dorsal Rhizotomy an operation that can change her life!

    For those of you who know me, know I have the longest hair you’ve ever seen (its down to my bum!) and you also probably know I am terrified of having my hair cut. After 10 years of growing my hair I am facing my biggest phobia and (FINALLY!) having it cut (into a bob) all in aid of the most inspirational little girl I’ve ever had the pleasure of meeting.

    Malaya Rose is a 4 year old singing, smiling, happy and gorgeous little girl who suffers from QUAD SPASTIC DIPLEGIA CEREBRAL PALSY. Malaya's condition means she has very tight muscles in her legs, arms and through her core. Fine motor movements and coordination are a real challenge for her and control is limited. Although she has these problems she lives and maintains a very busy and happy life.

    Every day Malaya has to have 2-3 sessions of stretching and physiotherapy to keep her muscles supple and her range of movement as complete as possible. She has one private physiotherapy session per week focused on fine motor cues and deliberate movements as well as one horse riding session per week to Improve both core stability and balance.

    A Selective Dorsal Rhizotomy would essentially rid her muscles of spasticity and tone, which is the main negative impact from Malaya's form of CP. It will enable her to use her muscles in a more deliberate manor through physiotherapy. It will relax those muscles mainly in her legs that are constantly trying to contract and will protect her in the future from further joint and bone diformaties. This operation will have an affect on so many things in Malaya's life and improve the following.

    *UNAIDED SITTING* *STANDING* *TOILETING* *EATING* *LEARNING* *SLEEPING* *TRAVELLING* *AIDED AND POTENTIALLY UNAIDED WALKING* *PLAYING* *TRANSITIONING* *DAILY ACTIVITIES*

    SDR is currently NOT available on the NHS in the U.K. the operation itself costs £22,500 and the essential intensive physiotherapy running the course of 2 years+ also notfunded by the NHS costs a further £20,000+ So every penny we can raise really will make a difference.

    I will also be donating my hair to a cancer trust that makes wigs for cancer patients who have lost their hair.

    Updates

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    Shanel Edin

    Updates appear here

      5 years ago

      Shanel Edin started crowdfunding

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      Page last updated on: 4/29/2019 13.10

      Supporters

      34

      • Emma

        Emma

        Apr 29, 2019

        Well done Shanel!

        £10.00

      • Anonymous

        Anonymous

        Apr 10, 2019

        Amazing xxx such a lovely thing to do xxx

        £10.00

      • Tanyel

        Tanyel

        Apr 7, 2019

        Well done Shanny. Lots of love Tan xx

        £10.00

      • helen cox

        helen cox

        Apr 7, 2019

        well done beautiful xx

        £10.00

      • Julie Oneill

        Julie Oneill

        Apr 7, 2019

        Well done Shan great cause 😘😘

        £10.00

      • Anonymous

        Anonymous

        Apr 7, 2019

        Well done xx

        £5.00

      • Eliz

        Eliz

        Apr 7, 2019

        Well done shan🎉🎉 proud of you!!

        £10.00

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      Shanel Edin

      Shanel Edin

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