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Shanel Edin raised £430 from 34 supporters
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Closed 09/07/2019
Weʼve raised £430 to Change special little girls life & enable her to have a Selective Dorsal Rhizotomy an operation.
- Funded on Tuesday, 9th July 2019
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Story
I am raising money for a special little girl called Malaya to have a Selective Dorsal Rhizotomy an operation that can change her life!
For those of you who know me, know I have the longest hair you’ve ever seen (its down to my bum!) and you also probably know I am terrified of having my hair cut. After 10 years of growing my hair I am facing my biggest phobia and (FINALLY!) having it cut (into a bob) all in aid of the most inspirational little girl I’ve ever had the pleasure of meeting.
Malaya Rose is a 4 year old singing, smiling, happy and gorgeous little girl who suffers from QUAD SPASTIC DIPLEGIA CEREBRAL PALSY. Malaya's condition means she has very tight muscles in her legs, arms and through her core. Fine motor movements and coordination are a real challenge for her and control is limited. Although she has these problems she lives and maintains a very busy and happy life.
Every day Malaya has to have 2-3 sessions of stretching and physiotherapy to keep her muscles supple and her range of movement as complete as possible. She has one private physiotherapy session per week focused on fine motor cues and deliberate movements as well as one horse riding session per week to Improve both core stability and balance.
A Selective Dorsal Rhizotomy would essentially rid her muscles of spasticity and tone, which is the main negative impact from Malaya's form of CP. It will enable her to use her muscles in a more deliberate manor through physiotherapy. It will relax those muscles mainly in her legs that are constantly trying to contract and will protect her in the future from further joint and bone diformaties. This operation will have an affect on so many things in Malaya's life and improve the following.
*UNAIDED SITTING* *STANDING* *TOILETING* *EATING* *LEARNING* *SLEEPING* *TRAVELLING* *AIDED AND POTENTIALLY UNAIDED WALKING* *PLAYING* *TRANSITIONING* *DAILY ACTIVITIES*
SDR is currently NOT available on the NHS in the U.K. the operation itself costs £22,500 and the essential intensive physiotherapy running the course of 2 years+ also notfunded by the NHS costs a further £20,000+ So every penny we can raise really will make a difference.
I will also be donating my hair to a cancer trust that makes wigs for cancer patients who have lost their hair.
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Supporters
34
Emma
Apr 29, 2019
Well done Shanel!
£10.00
Anonymous
Apr 10, 2019
Amazing xxx such a lovely thing to do xxx
£10.00
Tanyel
Apr 7, 2019
Well done Shanny. Lots of love Tan xx
£10.00
helen cox
Apr 7, 2019
well done beautiful xx
£10.00
Julie Oneill
Apr 7, 2019
Well done Shan great cause 😘😘
£10.00
Anonymous
Apr 7, 2019
Well done xx
£5.00
Eliz
Apr 7, 2019
Well done shan🎉🎉 proud of you!!
£10.00
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