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Nick, Hannah, Dave, Caroline, Tom and Ashleigh raised £600 from 19 supporters
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Closed 31/03/2018
Weʼve raised £600 to find a cure for Lysosomal Diseases
- Bristol, United Kingdom
- Funded on Saturday, 31st March 2018
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Story
As a group of runners we've decided to take on our biggest challenge yet.
Next summer we will be competing in the Chamonix Running weekend, each running between 23km and 90km up and around the Mont Blanc mountain range. With this being such a momentous challenge we've decided to do this it in support of finding a cure for the rare genetic Lysosomal diseases - we hope you can help us raise as much money as possible for this very worthwhile cause!
For those who don't know, Lysosomal diseases, or Lysosomal Storage Diseases, are a group of approximately 50 rare inherited metabolic disorders that result from defects in lysosomal function. The lysosomal function is where lysosomes (sacs of enzymes within cell that digest large molecules and pass fragments onto parts of the cell for recycling) are defective, normally through mutation, causing large molecules to accumulate within the cell, eventually killing it. This can lead to a variety of progressive physical and/or mental deterioration over time. The diseases affect an estimated 1 in 5,000 live births with no cure or any specific treatments. We want to help change that.
LETS HELP CURE LYSOSOMAL DISEASES - PLEASE DONATE!
Thanks for all your support,
Nick, Hannah, Dave, Caroline, Tom and Ashleigh x
Updates
3
- 6 years ago
Nick, Hannah, Dave, Caroline, Tom and Ashleigh
6 years agoWith 2017 coming to a close and it being 6 months until the big day we just wanted to say a massive thank you to all of our supporters. Your donations really make a huge difference and spur us on as we continue to train for our respective challenges. We hope you've all had a fantastic festive period and have a wonderful New Year, here's to a monumental, mountainous, 2018!
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- 7 years ago
Nick, Hannah, Dave, Caroline, Tom and Ashleigh
7 years agoTraining’s going well- follow us on strava to see how we’re getting on! Here’s a little message from Nick on his 14 mile run yesterday (excuse the wind... not from him this time):
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- 7 years ago
Nick, Hannah, Dave, Caroline, Tom and Ashleigh
7 years agoPage launched - let's get raising money!
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Nick, Hannah, Dave, Caroline, Tom and Ashleigh started crowdfunding
Leave a message of support
Supporters
19
Saoirse Vowles
Mar 5, 2018
Sorry its not much but it takes you to your target! Good work guys! X
£5.00
Chris & JoJo
Mar 3, 2018
Good effort Dave - pack some sudocrem! Bon chance mon brave.
£50.00
David, Mary & Izzy
Jan 14, 2018
Good luck. Have a fabulous time. Don't forget to look up. The scenery is amazing. x
£100.00
Anonymous
Jan 11, 2018
Nick you are insane! Good luck
£50.00
Marc Wooldridge
Jan 7, 2018
You must be mad, good luck ! Marc & Susannah
£50.00
Dan Bartlett
Jan 2, 2018
That is a lot of vert... good luck!
£10.00
Erwin Booij
Dec 29, 2017
Good luck Nick
£10.00
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