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£444raised of £300 target by 13 supporters

Weʼre raising £300 to raise much needed funds for P.O.R.T the sole provider of research for Chronic Intestinal Pseudo Obstruction & Intestinal Failure in the UK.

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Story

My nephew Charlie suffers from Chronic Intestinal Pseudo Obstruction. A disease that is so rare that PORT is the only charity which is raising funds to research this life debillatating disease that affects 1 in 541,000! And sadly as it is so rare it doesn‘t receive any goverment funding, so it is solely dependant on family and friends fundraising to bridge that gap.

For Charlie, in real terms, it means he has had to endure 30 operations, been on the transplant list, taken off of the list, has countless visits to the hospital. And on a more normal level he doesnt eat as most people do, instead he receives the majority of his dietary requirements via a milk based source which is given to him via a kind of drip throughout the night.

Charlie, like his Dad is a rugby nut & regularly watches Sale Sharks but sadly he will never be able to play rugby himself as he has a collostamy bag. Thankfully Charlie is a superstar who nevers lets his illmess get him down & truly embraces every opportunity he is given. And why shouldnt he?

I, as his Auntie would like to be able to help raise a few quid (a mere drop in the ocean really) to help get a little closer to the goal of understanding this disease so it can be more affectively treated & who knows... one day eradicated!

If you can donate a few quid all of us taking part and those at P.O.R.T would be eternally grateful.

With Love & wishes of good health,

Auntie Nat 😘

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Updates

2

  • Natalie Fitzsimmons - Wilson2 months ago
    Natalie Fitzsimmons - Wilson

    Natalie Fitzsimmons - Wilson

    2 months ago
    Update from the Page owner

    We have nearly reached our target of £300. Can anyone else donate anything to help us get over the line? It’s for a worthy cause.. Thanks guys xx

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  • Natalie Fitzsimmons - Wilson2 months ago
    Natalie Fitzsimmons - Wilson

    Natalie Fitzsimmons - Wilson

    2 months ago

    So we did it!!! All 9 of us completed the course with beaming smiles. It was hot, we got wet & the mum’s even had to endure ‘The bog of doom’ (A smelly, muddy stream we had to trudge through for about 200 metres🤢). Our target is to raise £300 for our efforts to be able to present to the Charity PORT at their Charity Ball at the end of this month. So please help us hit our goal by donating. Thanks so much Nat & Finley, Jo & Lewis, Simone & Kai, Dillon, Alfie & Charlie 😘😘😘

    Share this update to help us raise more

3 months ago

Natalie Fitzsimmons - Wilson started crowdfunding

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Page last updated on: 6/22/2018 10:35 PM

Supporters

13

  • Lorcan Moriarty

    Lorcan Moriarty

    Jun 22, 2018

    Keep up the good work! X

    £10.00

  • Anonymous

    Anonymous

    Jun 22, 2018

    £209.00

  • Saoirse Wilson

    Saoirse Wilson

    Jun 11, 2018

    Well done nat and finn xxzx

    £20.00

  • Lindsey Fitzsimmons-wilson

    Lindsey Fitzsimmons-wilson

    Jun 11, 2018

    Well done Nat!! love From Linz, Kil, Char and Annie xxxx

    £20.00

  • Anonymous

    Anonymous

    Jun 11, 2018

    Well done Nat!! From Trig, Natalie & Jack xxx

    £30.00

  • David Kemp

    David Kemp

    Jun 11, 2018

    Well done Nat, super effort for an amazing cause and an amazing little boy, you guys are all awesome, love you all loads xxx

    £30.00

  • Clare Compton

    Clare Compton

    Jun 10, 2018

    Well done you muddy lot!! X

    £10.00

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Natalie Fitzsimmons - Wilson

Natalie Fitzsimmons - Wilson

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