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Timothy Jones raised £635 from 36 supporters

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Closed 06/10/2018

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£635raised of £500 target by 36 supporters

    Weʼve raised £635 to to help siblings Ollie and Amelia achieve as full a life as is possible and to fund research to find a cure for Battens disease

    Macclesfield, UK
    Funded on Saturday, 6th October 2018

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    Story

    Ollie is a 6 year old boy.

    In February 2015 he was diagnosed with Battens disease; a rare life limiting neurodegenerative disease.

    Six weeks later his younger sister Amelia was also diagnosed with Battens.

    There is no cure.

    Children with Battens suffer seizures, lose the ability to walk, speak, swallow and their vision, and they do not normally live beyond the age of 12.

    From midday September 1st I'll be walking the Bullock Smithy; that's 56 miles, roughly the equivalent of walking Manchester to Leeds, in one go, walking right through the night for around 24 hours solidly taking on the Peak District and many of its summits. For you Fitbitters thats approximately 123,200 steps!

    Im doing it to raise money both for this family to make their limited time together as special as possible, but also to support their work in raising awareness and helping fund research into finding a cure.

    I am not a walker.

    It's something I've been doing more of recently, particularly since i decided to take on this massive challenge, but the furthest I've walked so far, once, is just 20 miles and I was hobbling like John Wayne for two days afterwards. I'm risking chafing in places you don't want chafing, lost toenails, tears and tantrums for Ollie, Amelia and other children with Battens, hopefully you can dig deep too

    More information on Ollie's Army

    More information on the Bullock Smithy

    Updates

    3

    • Timothy Jones4 months ago
      Timothy Jones

      Timothy Jones

      4 months ago

      Guys this is all brilliant, thank you....~ Plus i had a sneaky peek in the charity pots on the bar today and there's over £300 in there so target SMASHED You are all amazing! Now to do it....it's just walking innit?

      Share this update to help us raise more

    • Timothy Jones5 months ago
      Timothy Jones

      Timothy Jones

      5 months ago
      Update from the Page owner

      Share this update to help us raise more

    • Timothy Jones8 months ago
      Timothy Jones

      Timothy Jones

      8 months ago
      Update from the Page owner

      Share this update to help us raise more

    8 months ago

    Timothy Jones started crowdfunding

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    Page last updated on: 9/16/2018 12:56 PM

    Supporters

    36

    • Bereka

      Bereka

      Sep 16, 2018

      A Big Well Done Tim! Hope your feet are healing well.

      £10.00

    • Brenda Clarke

      Brenda Clarke

      Sep 6, 2018

      £10.00

    • Paul Creasey

      Paul Creasey

      Sep 5, 2018

      Congratulations Tim on completing the gruelling 56ml, it’s a humongerous achievement, one I’ve done quite a few times myself & for charity too. But now I’ve resigned myself to helping out at the event

      £10.00

    • Kirsty Perry

      Kirsty Perry

      Sep 3, 2018

      Well done 👍🏻 X

      £5.00

    • Susan Wolfenden

      Susan Wolfenden

      Sep 2, 2018

      Well done!! Xx

      £30.00

    • Nikki

      Nikki

      Sep 2, 2018

      Go Tim

      £10.00

    • Victoria Kinsella

      Victoria Kinsella

      Sep 1, 2018

      what a lovely thing for you to do, I hope you're not hobbling for too long after this xx

      £10.00

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    About Crowdfunding
    About the fundraiser
    Timothy Jones

    Timothy Jones

    Macclesfield, UK

    I'm a mid 30s Pub Manager, carrying a bit more weight than I'd like, I make noises when i get off chairs and I've started grumbling under my breath at fit people. Right now I am not the man to be doing this, hopefully by September I will be.

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