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£200raised of £500 target by 11 supporters

Weʼre raising £500 to to help siblings Ollie and Amelia achieve as full a life as is possible and to fund research to find a cure for Battens disease

Macclesfield, UK

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Story

Ollie is a 6 year old boy.

In February 2015 he was diagnosed with Battens disease; a rare life limiting neurodegenerative disease.

Six weeks later his younger sister Amelia was also diagnosed with Battens.

There is no cure.

Children with Battens suffer seizures, lose the ability to walk, speak, swallow and their vision, and they do not normally live beyond the age of 12.

From midday September 1st I'll be walking the Bullock Smithy; that's 56 miles, roughly the equivalent of walking Manchester to Leeds, in one go, walking right through the night for around 24 hours solidly taking on the Peak District and many of its summits. For you Fitbitters thats approximately 123,200 steps!

Im doing it to raise money both for this family to make their limited time together as special as possible, but also to support their work in raising awareness and helping fund research into finding a cure.

I am not a walker.

It's something I've been doing more of recently, particularly since i decided to take on this massive challenge, but the furthest I've walked so far, once, is just 20 miles and I was hobbling like John Wayne for two days afterwards. I'm risking chafing in places you don't want chafing, lost toenails, tears and tantrums for Ollie, Amelia and other children with Battens, hopefully you can dig deep too

More information on Ollie's Army

More information on the Bullock Smithy

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2

  • Timothy Jones23 days ago
    Timothy Jones

    Timothy Jones

    23 days ago
    Update from the Page owner

    Share this update to help us raise more

  • Timothy Jones4 months ago
    Timothy Jones

    Timothy Jones

    4 months ago
    Update from the Page owner

    Share this update to help us raise more

4 months ago

Timothy Jones started crowdfunding

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Page last updated on: 7/26/2018 4:49 PM

Supporters

11

  • Laura Bennett-Whiskens

    Laura Bennett-Whiskens

    Jul 26, 2018

    Good luck love, super proud of you! X

    £50.00

  • Alex

    Alex

    Jul 23, 2018

    Good luck buddy!

    £10.00

  • Rob Comer

    Rob Comer

    Jul 18, 2018

    Good luck mate

    £10.00

  • Bob Harris

    Bob Harris

    Jul 13, 2018

    Good Luck!

    £10.00

  • Jonathan Davies

    Jonathan Davies

    Jul 13, 2018

    Good luck Tim. You'll be sore for days afterwards .... 😉😂👍🥇

    £10.00

  • M/A Howard

    M/A Howard

    Jul 13, 2018

    Go for it. X

    £10.00

  • Tim, Katie, Hazel and Jack

    Tim, Katie, Hazel and Jack

    May 18, 2018

    Witness the fitness! Good luck fella👍

    £50.00

Timothy Jones

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About the fundraiser
Timothy Jones

Timothy Jones

Macclesfield, UK

I'm a mid 30s Pub Manager, carrying a bit more weight than I'd like, I make noises when i get off chairs and I've started grumbling under my breath at fit people. Right now I am not the man to be doing this, hopefully by September I will be.

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