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jo eames raised £2,680 from 36 supporters
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Closed 05/03/2019
Weʼve raised £2,680 to Defend Super William Against Duchenne
- Funded on Tuesday, 5th March 2019
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Story
A message from Neil Baker, organiser of the fundraiser:
On Thursday 15th November I am running a charity day for one of my friends (Matt Eames). His son William has Duchenne muscular dystrophy, for which there is no cure and which will massively impact his quality and length of life.
William was diagnosed with Duchenne Muscular Dystrophy in January 2016 at just 3 years old.
Duchenne MD is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected with DMD. It is a devastating, progressive and currently incurable muscle-wasting disease. Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin, a protein that plays a key structural role in muscle fibre function. Boys with DMD do not produce dystrophin.
Life expectancy is improving as standards of care and knowledge about Duchenne increase however, there is currently no cure for Duchenne.
Myself, and 2 other trainers are giving up a days work in order to support William. We are booking 30 and 60 minute training session and are asking for a minimum donation of £10 towards the charity per 30 minute session, we also have some physio/massage sessions available and also looking for willing people to keep 2 bikes going in the gym all day (also in 30 minute slots). On the day there is a raffle, and auction…..it would be great if you can make it to help support us and William.
If you also have any friends or colleagues who are available or interested in trying PT, or physio/massage….please spread the word.
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Supporters
36
Nash
Jan 28, 2019
Great session great cause
Anonymous
Nov 27, 2018
Les Bruce
Nov 19, 2018
Great effort Neil! Best of luck William
£30.00
Neil Baker
Nov 19, 2018
Giving up a days work for William was well worth it ....we had an amazing day, everyone was buzzing. Thanks everyone for all your support, you were all brilliant.
£1,000.00
JT
Nov 17, 2018
Matty and Jo - keep up the great work. Hopefully see you guys soon. (You too Bakeshow).
£200.00
Ayo Taiwo
Nov 17, 2018
🙌🏿🙌🏿🙌🏿👍🏿£20 from Ayo Taiwo
£20.00
Paul Woodland
Nov 17, 2018
Well done to Neil and members of the FF team for organising the event in support of William
£50.00
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