Weʼre raising £1,000 to help the Davies family buy specialist equipment & adapt their home for their little boy, Oliver. Oliver has Spinal Muscular Atrophy Type 2.
- Rochford, United Kingdom
- Disability support
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Oliver was born on 22nd May 2015 and is the youngest of 3 children.
When he was almost 1, his parents noticed Oliver was not bearing any weight on his legs and whilst he was sitting he was unable to move out of position without assistance.
After a year of misdiagnosis Oliver was sadly diagnosed with Spinal Muscular Atrophy Type 2 in June 2017 only 2 weeks after his 2nd birthday.
Spinal Muscular Atrophy (SMA) is a genetic condition that makes the muscles weaker and causes problems with movement.
It's a serious condition that gets worse over time, but there are treatments to help manage the symptoms
In order to live life to the maximum Oliver requires various items of equipment including a specialist wheelchair and standing frame among others. These are not available on the NHS and the best wheelchair he could get (designed by another SMA sufferer) costs up to £25,000!!
In addition, the Davies' family need to drastically adapt and extend their home to make it fully accessible for Oliver.
As most of you are aware we lost our own son, Jack, to SMA in August at just 3 months old . We have already raised a large amount of money and awareness for The SMA Trust but we would love to now turn our attention to raising money to help another local family in memory of our little boy.
Please help us, help the Davies family in any way you can.
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St Andrews Community Club
Dec 21, 2017
Raised at the St Andrews Community Club coffee morning!Huge thanks to Dawn for organising!xxx
Dec 21, 2017
Money raised from everyone who attended the quiz night! Big thanks to everyone for donating.
Dec 20, 2017
Dec 18, 2017
Fantastic cause & looking forward to doing your quiz once I get the email.
Dec 18, 2017
Dec 14, 2017
Lucy & David Roberts
Dec 11, 2017
Instead of Christmas cards this year we wanted to donate the money that would’ve been spent to a worthy cause. In memory of darling Jack xx
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About the fundraiser
Rochford, United Kingdom
In July 2017 our beautiful baby boy, Jack William, was diagnosed with Spinal Muscular Atrophy Type 1 at just 7 weeks old. 6 weeks later Jack sadly passed away. In memory of our boy we want to raise as much awareness as possible for SMA, the number 1 genetic killer of infants.
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