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£14,013raised of £1,000 target by 106 supporters

Weʼre raising £1,000 to help the Davies family buy specialist equipment & adapt their home for their little boy, Oliver. Oliver has Spinal Muscular Atrophy Type 2.

Rochford, United Kingdom

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Story

Oliver was born on 22nd May 2015 and is the youngest of 3 children.

When he was almost 1, his parents noticed Oliver was not bearing any weight on his legs and whilst he was sitting he was unable to move out of position without assistance.

After a year of misdiagnosis Oliver was sadly diagnosed with Spinal Muscular Atrophy Type 2 in June 2017 only 2 weeks after his 2nd birthday.

Spinal Muscular Atrophy (SMA) is a genetic condition that makes the muscles weaker and causes problems with movement.

It's a serious condition that gets worse over time, but there are treatments to help manage the symptoms

In order to live life to the maximum Oliver requires various items of equipment including a specialist wheelchair and standing frame among others. These are not available on the NHS and the best wheelchair he could get (designed by another SMA sufferer) costs up to £25,000!!

In addition, the Davies' family need to drastically adapt and extend their home to make it fully accessible for Oliver.

As most of you are aware we lost our own son, Jack, to SMA in August at just 3 months old . We have already raised a large amount of money and awareness for The SMA Trust but we would love to now turn our attention to raising money to help another local family in memory of our little boy.

Please help us, help the Davies family in any way you can.

Thank you!!

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Updates

7

  • Sarah Dorrington1 month ago
    Sarah Dorrington

    Sarah Dorrington

    1 month ago

    Horse riding is an excellent form of physiotherapy, working the core muscles even whilst the horse is walking.. Oliver rides with the rda (riding for the disabled) who have really supported his independence on horse back sourcing a special saddle to give him independence and organising courses which will include stretches

    Update from the Page owner

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  • Sarah Dorrington1 month ago
    Sarah Dorrington

    Sarah Dorrington

    1 month ago

    Oliver with Jack’s big sister Daisy and Captain America! 😍

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  • Sarah Dorrington1 month ago
    Sarah Dorrington

    Sarah Dorrington

    1 month ago

    The Dorrington and Davies Family meeting Metro Man at Metro bank last year. Metro very generously donated towards our crowdfunding for Oliver in memory of Jack xxx

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1 year ago

Sarah Dorrington started crowdfunding

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Page last updated on: 10/13/2018 8:38 PM

Supporters

106

  • Martin

    Martin

    Sep 28, 2018

    Well done Jamie

    £20.00

  • Grace

    Grace

    Sep 25, 2018

    Well done Jamie, you did so well you superstar!! X

    £10.00

  • Toby

    Toby

    Sep 24, 2018

    Well done Jamie, smashed it 👍

    £10.00

  • Zachary Brittain

    Zachary Brittain

    Sep 21, 2018

    For Jamie Ging(e)

    £10.00

  • Steve and Caroline xx

    Steve and Caroline xx

    Sep 18, 2018

    Good luck Jamie, you know you can do it!!!!

    £30.00

  • James Dorrington

    James Dorrington

    Sep 10, 2018

    J.W.D INVITATIONAL

    £2,000.00

  • Katherine Lennon

    Katherine Lennon

    Sep 2, 2018

    Our very best wishes Kathy & Steve Lennon

    £30.00

Sarah Dorrington

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About the fundraiser
Sarah Dorrington

Sarah Dorrington

Rochford, United Kingdom

In July 2017 our beautiful baby boy, Jack William, was diagnosed with Spinal Muscular Atrophy Type 1 at just 7 weeks old. 6 weeks later Jack sadly passed away. In memory of our boy we want to raise as much awareness as possible for SMA, the number 1 genetic killer of infants.

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