ONE PLACE TO ANOTHER

Our beautiful son Jude was born on 25th February 2018. From his first day, he struggled feeding, had low muscle tone and eventually delays with speech and mobility. Despite all of this he was the happiest, strongest and most resilient little boy. We were in and out of hospital for most of his life. During his third stay on ICU, we discovered that Jude had a very rare condition called RETT SYNDROME. Twelve days after his diagnosis, Jude peacefully passed away on 1st January 2020.

Since his death, we have been trying to process our overwhelming grief and turn it into something positive as a tribute to our brave, happy little boy.

On March 6th (Covid-restrictions depending) Phil - Jude's Father - will be walking from our front door in Stockport to Antony Gormley's art installation Another Place on Crosby Beach - a distance of over 40 miles - in a single day, to raise money to have a 'buddy bench' in our local park in memory of Jude. Manchester Road Park is a place we came to with Jude and continue to come to with his big sister Mathilde. We want to do something that honours our son and brings joy to our community and this felt like the right thing to do. With the permission from the local community we will display a memorial plaque on the bench to help raise awareness about Jude and his story. If there is any money left after the purchase of the bench, it will go to the charity Reverse Rett - the only UK charity funding research focused on treatments and a cure for Rett Syndrome.

Thank you for reading and donating.

Phil, Claire and Mathilde x