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Pennys Army

Pennys Army is crowdfunding

0%
£3,249raised of £10,000 target by 109 supporters

Weʼre raising £10,000 to Help support #pennysarmy and BloodBikes. We are holding a 24hr WOD to raise money. https://www.centralstaffscrossfit.com/24wod

Stafford, UK
13 days to go

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

We are collecting donations for 2 amazing causes, Blood Bikes and Pennys Army.

Blood Bikes an amazing group of volunteers who deliver urgent medical samples (blood, platelets, donated frozen breast milk etc) completely free of charge for our local NHS hospitals.

These 100% volunteers are the riders, the controllers and the fundraisers who work as a team to help the NHS improve the lives of patients and their families. Samples are transported on their fleet of Home Office approved blood bikes who made 4693 deliveries in 2017 and rode 195,182 miles. Funds raised will help keep the bikes safely on the road.

Our second cause is for Penny, here is Pennys story.

On 18th September 2018 Penny was diagnosed with Mucopolysaccharidosis (MPS) III Type A - Sanfilippo Disease. This is a very rare, life limiting disease that causes progressive complex needs and severe learning difficulties. Penny has an enzyme missing, which means her body cannot break down Mucopolysaccharides, these will store in her body and cause cell damage, mainly affecting her brain.

As the disease progresses, children with MPS III become hyperactive and display difficult behaviours, sleeplessness, loss of speech and continence, eventually being unable to walk, eat and communicate, losing a lot of skills they have acquired during the first years of their life. Brain damage can cause dementia and seizures, children can get joint pain as they stop becoming mobile. Most children do not live into adulthood.

Receiving a diagnosis like this is heartbreaking and difficult for us as a family to process. Penny has shown delays since the age of 2 years old, and had lots health issues. We have known for a while that she was different to other children her age, but never imagined that it would be such an awful diagnosis. We have got to watch our beautiful little girl lose all of her skills, slowly stop being able to do the things that she loves like running around with her brothers and eating. This horrible disease will slowly take my little girl away from me.

Right now Penny is ok! She is delayed and hyperactive, will never be toilet trained and eats the most inappropriate things! She is funny, cheeky, bossy and very loving. If you meet her she will end up becoming your best friend very quickly, wanting hugs and kisses. Penny lights up a room with her infectious smile and endless energy. We need to make the most of each and every day with her, we know our time with her is limited, and we are going to make sure we make the most amazing memories.

Fundraising for Penny will help towards sensory equipment, we would like to make her a sensory room with lots of soft play. She will eventually need a downstairs bedroom and wetroom, this money can help towards giving her the most amazing space with everything she will need as the disease progresses.

We also want to take her Disneyland... Penny loves Disney! It is something we have always said we would plan for when she is older, but we want to take whilst she is mobile and able to enjoy the experience.

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Updates

8

  • Pennys Army9 months ago
    Pennys Army

    Pennys Army

    9 months ago

    We just wanted to give you an update on our fundraising so far. The amazing generousity of all those who have donated to this fund, and the incredible support we received during our charity event, we managed to raise a total of £5134. THANK YOU ALL We are planning more events throughout 2019, with our next one on the 29th June. More details on that to follow in the next week. We are so thankful to every single person who made this possible. x

    Update from the Page owner

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  • Pennys Army10 months ago
    Pennys Army

    Pennys Army

    10 months ago
    Update from the Page owner

    WOW!! We have cracked the £2000 mark!. We are absolutley amazed at your support. Thank you all so much for your contributions to our cause. Please feel free to come down to Central Staffs Crossfit on Friday 28th December 2018 to see Rich Bell embark on his 24 hour Workout. There will be tea, coffee, cakes and more. All in aid of Blood Bikes and Penny's Army.

    Share this update to help us raise more

  • Pennys Army1 year ago
    Pennys Army

    Pennys Army

    1 year ago
    Update from the Page owner

    Thank you so much everyone

    Share this update to help us raise more

1 year ago

Pennys Army started crowdfunding

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Page last updated on: 4/4/2019 19.42

Supporters

109

  • Anonymous

    Anonymous

    Apr 4, 2019

    Well done to everyone

  • Anonymous

    Anonymous

    Mar 23, 2019

    £15.00

  • Anonymous

    Anonymous

    Mar 4, 2019

    Zoe, Andy and everyone running for Pennys Army, good luck from the Silvester family x

    £20.00

  • Anonymous

    Anonymous

    Jan 6, 2019

    £10.00

  • Anna & Steve Hickinbotham

    Anna & Steve Hickinbotham

    Jan 1, 2019

    Well done to everyone in the 24hr workout!

    £30.00

  • Mrs J  Clewley

    Mrs J Clewley

    Dec 31, 2018

    I really hope a cure can be found very soon.

    £5.00

  • Emily Jayne

    Emily Jayne

    Dec 31, 2018

    💖

Pennys Army

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About the fundraiser
Pennys Army

Pennys Army

Stafford, UK

A just giving page to help raise money for Penny's Army and Blood Bikes. This is part of the 24HR workout we are doing at Central Staffs Crossfit on the 28th December. Anyone wishing to participate can sign up here https://www.centralstaffscrossfit.com/24wod.

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