Weʼre raising £20,000 to Fighting the fire of Multiple Sclerosis with HSCT Treatment in Moscow.
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FIGHTING THE FIRE OF MS WITH HSCT IN MOSCOW
In 1986 Piers (Nick) joined DORSET FIRE AND RESCUE SERVICE his dream job.
In 2005 he was diagnosed with Relapsing Remitting MULTIPLE SCLEROSIS which progressed to Secondary Progressive in 2010. After 28.5 years in the Fire Service he was medically discharged from the job he loved due to his progressive disability. On leaving the fire service he was recruited back as a volunteer but had to give that up as he was unable to get into most homes to carry out Home Safety Checks. He has since found an avenue for his safety training Volunteering as a Safety Education Guide Educating Children at the SAFEWISE SAFETY EDUCATION CENTRE. (He will not give up without a fight. In 2004 he cycled 1 stage of the Tour de France to raise money for Safewise). Having been physically active all his life the slow but sure decline has been very hard for both of us watching him struggle to do the things that we all take for granted.
Throughout his illness there have been no drugs available for his particular symptoms even though every time we went to the Neurologist we would ask what was available, only to be told nothing in his case. Seeing other sufferers on drugs that have aided their symptoms has made us more determined to beat this awful disease and if treatment is available elsewhere to then go for it.
HSCT.(HEMATOPOIETIC STEM CELL TRANSPLANT) involves giving the patient doses of chemotherapy and injections to encourage the stem cells to move from the bone marrow to the blood which are then removed, cleaned and frozen. More chemotherapy is then given to wipe out the immune system and the cleaned stem cells are then planted back into the body to regrow the immune system. Moscow is the leading centre in Stem Cell Treatment and has been offering the procedure for in excess of 10 years for M.S. patients. Piers (Nick) has been accepted by them and they have booked him in for the procedure in February 2019 at a cost of £50,000 You may ask why can’t he have it in the U.K? The criteria to have Stem Cell Treatment on the NHS is not available to Secondary Progressive M.S. patients therefore we have no option but to fund the treatment ourselves. There are opportunities for private treatment in the UK. but the costs are in excess of £80,000
Apart from his limited mobility which most people associate with M.S. Piers (Nick) has difficulty with fatigue, memory, eyesight and dexterity therefore making daily life a battle. He even struggles with the easiest of tasks, for example doing up his shirt buttons. Getting out of bed in the morning is even more of a struggle. Stem Cell Treatment is the only procedure that is 90% certain will halt any further progression of the M.S. and possibly could remove some of his disabilities, thereby reducing the chances of him ending up in a wheelchair permanently and giving us a better quality of life.
I am asking you all to help us reach the £50,000 target to give my wonderful husband the best chance of getting his life back, giving us all hope of a brighter future and finally stopping this dreadful disease in its tracks!
We would love as many people as possible to help support us in any way possible.
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Aug 15, 2018
Aug 15, 2018
So pleased that you've got this chance and know you will put your all in to make it work, sending big hugs .Love Sarah and Ian x
Aug 14, 2018
Aug 13, 2018
Pascalle Wells (DWFRS)
Aug 13, 2018
All the best Nick - thanks for showing us around the Safety Centre earlier this year, was great to meet you and learn about your involvement in the SC from it's humble beginnings. Rooting for you.
Aug 13, 2018
Woohoo. Here we go , here we go, here we go....... xx
Aug 11, 2018
Good luck Piers, Everything crossed for a great result. Ann and Chris
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