Weʼre raising £30,000 to finance treatment and aid for our son Oliver Johnson. He has been diagnosed with LHON (Leber Hereditary Optical Neuropathy). #raisingforolly
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Oliver (Olly) was diagnosed with LHON (Leber Hereditary Optical Neuropathy) in November 2021. This condition usually begins in a person's teens or twenties and for unknown reasons, males are affected much more often than females.
Blurring and clouding of vision are usually the first symptoms of LHON. These vision problems may begin in one eye or simultaneously in both eyes; if vision loss starts in one eye, the other eye is usually affected within several weeks or months. Over time, vision in both eyes worsens with a severe loss of sharpness (visual acuity) and color vision. This condition mainly affects central vision, which is needed for detailed tasks such as reading, driving, and recognizing faces. Vision loss results from the death of cells in the nerve that relays visual information from the eyes to the brain (the optic nerve). Although central vision gradually improves in a small percentage of cases, in most cases the vision loss is profound and permanent.
In Olivers case, both eyes are affected. He started treatment in November, but it is expensive and carries only a small percentage of success. We therefore want to raise money to help fund his treatment and any visual aids going forward. Olly is a very active and sporty lad, playing lots of Sports, in particular football for Brinscall Village Junior Football Club. As you can imagine, this condition is affecting that considerably. We will be holding fund raising activities in the coming months - the first of which is detailed below.
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- 3 months ago
Richard Johnson3 months ago
Thank you to everybody who has passed wishes, donated and shared. We are very grateful for the support, its is much appreciated.
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Richard Johnson started crowdfunding
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Jun 30, 2022
Good luck with the treatment Oliver
Jun 29, 2022
Jun 26, 2022
Donation from Football Festival Raffle 2022
Jun 13, 2022
Stay positive Ollie ,
Jun 13, 2022
Jun 13, 2022
Rachel Kidd and family
Jun 10, 2022
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