Weʼve raised £100 to to help raise money for Henry Vinen, a 5 month old baby who is fighting the rare immunodeficiency disease - SCID.
- Shipdham, United Kingdom
- Funded on Friday, 29th September 2017
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I recently found out that some friends of mine hava a really poorly son called called Henry Vinen who is 5 months old. Henry has been diagnosed with SCID (Severe combined immunodeficiency) disorder, which means that his body cannot produce white bloods effectively to fight off the most common of illnesses. As such, he has spent much of the past 5 months in Great Ormond street and has recently undergone a bone marrow transplant from his younger brother Oscar (nearly 2 yrs old). So to help Henry and his family, I am going to undertake an active weekend on September the 16/17th including the Norwich 5k Gung-Ho on Saturday and an organised village 10k run on sunday.
I want to raise funds to support the Vinen family and raise awareness of this disorder which has recently been discussed at parliamentary level to improve its early screening: (https://hansard.parliament.uk/Lords/2017-06-29/debates/9A69A4EF-E7C3-45DD-B16F-077F0C77D154/Queen%E2%80%99SSpeech)
So if you could spare a few quid, I/the vinen family would really appreciate it ;)
Updates appear here
Ryan Tinson started crowdfunding
Leave a message of support
Sep 16, 2017
Good Luck tomorrow with the 10k run, you can do it. From Nan G & Dawn xx
Sep 14, 2017
Good luck Ryan! Hope all those hours in the gym pay off! :)
Sep 14, 2017
'My body is a temple' - I'll expect a record time ;)
Sep 13, 2017
Good Luck Ryan! You'll boss it!! X
Sep 1, 2017
Keep up the good training! :)
Aug 30, 2017
Good luck Ryan. You can do this and for such a great cause. Go team Ryan. Love Mummy R and Michael xxxxx
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