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£90raised of £2,000 target by 10 supporters

Weʼre raising £2,000 to Help fund any treatment that may help us save our beloved daughter , granddaughter and niece who has a life limiting brain disorder

Poole, United Kingdom

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Story

My beautiful granddaughter esmai rose was born on the 23/10/2017 born full term at 40 weeks and 3 days . The morning before her birth my daughter didn't feel her move much and was losing green and brown discharge. We went to the hospital the heart rate of baby was very high so drs decided to perform an emergency c section. My daughter was rushed to a theatre and they attempted an epidural but after 6 attempts it did not work so was put under General anaesthetic.
Baby esmai was born alive covered in meconium she had a heart rate but no respiratory effort so resuscitation was started. At 12 minutes old she went into seizure and drs struggled to control it she was put on a ventilator and was heavily sedated and transferred to the nicu at poole hospital. My daughter didnt get to see her for 6 hours and then could only touch her .
On Tuesday 24th october she was transferred as an emergency for more specialized treatment with an intensive care team to southampton nicu unit. An mri and lots of tests were preformed on the friday we were given the devastating news that she had extensive brain damage and specifically to the part of the brain that controlled her breathing, the professor of neonatal neurology told us that she had to breathe on her own and if she could do that she would stand a chance of life but would be suffer significant mental and physical disabilities. If she couldn't come of ventilator then we would have to talk about what was best for esmai we knew what that meant and as you can imagine we were totally distraught .within 48hrs she was breathing herself, crying , moving swallowing acting like a Newborn baby we were shocked but happy another mri was done.
The results were shocking her brain damage was worse the pons in her brain has almost disappeared , chunk of white matter disappeared and her basal ganglia is shrinking they have no diagnosis and no treatment shes been given 6 months to 2 years to live drs are baffled and we need to find help

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Updates

3

  • Patricia Mcgowan9 months ago
    Patricia Mcgowan

    Patricia Mcgowan

    9 months ago

    Please please keep sharing esmais story we are so grateful for the donations so far thanks so much

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  • Patricia Mcgowan9 months ago
    Patricia Mcgowan

    Patricia Mcgowan

    9 months ago

    Esmai's four weeks old today please please keep sharing our story ❤❤❤❤

    Update from the Page owner

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  • Patricia Mcgowan9 months ago
    Patricia Mcgowan

    Patricia Mcgowan

    9 months ago
    Update from the Page owner

    Share this update to help us raise more

9 months ago

Patricia Mcgowan started crowdfunding

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Page last updated on: 11/27/2017 5:50 PM

Supporters

10

  • luci Mauger

    luci Mauger

    Nov 19, 2017

    We are so so sorry to hear this devastating news and feel powerless on how to help. This is only such a small donation but we hope it’s a start for now. U are all in our thoughts xxx

    £10.00

  • Lorraine Roberts

    Lorraine Roberts

    Nov 19, 2017

    Sending all my love to you all, I just hope that treatment is found for beautiful Esmai-Rose, she is absolutely adorable xxx

    £10.00

  • Hayles Cunningham

    Hayles Cunningham

    Nov 19, 2017

    £5.00

  • Megan Winter

    Megan Winter

    Nov 19, 2017

    I hope that you get your answers and treatment! I cannot imagine what you’re going through! Sending big hugs and wishes! Xxx

    £10.00

  • Emily Mauger

    Emily Mauger

    Nov 19, 2017

    Such a little fighter, I hope this helps I know it’s not a lot, keep fighting ❤️❤️❤️❤️❤️

    £10.00

  • Megan palmer

    Megan palmer

    Nov 19, 2017

    I really hope you find help for little esmai, sending lots of love, sorry its not a lot 💙💙

    £10.00

  • Tanya Cross

    Tanya Cross

    Nov 19, 2017

    Trinity was covered in meconium its soo scary ... but cant imahine what ur all goin tru....stay strong Izzy partner and family ... shes clearly a fighter .x.x.x.

    £20.00

Patricia Mcgowan

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About the fundraiser
Patricia Mcgowan

Patricia Mcgowan

Poole, United Kingdom

Raising funds to help find a treatment for a baby with a very rare brain disorder the drs are baffled and dont know whats causing her brain to disappear . Esmai was born with brain damage and a second mri 10 days later showed the brain damage worsening theres no treatment

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