Weʼre raising £1,000 to Raise Funds for Noah and Gracie Coates.
- Carrickfergus, UK
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Following from a successful 2017, St Patrick's Masonic Lodge 43,(Carrickfergus) are returning in 2018 to support Noah and Gracie Coates.
Please join us in JustGiving your support for a worthwhile and very appreciative cause, that makes a difference.
At 2 and a half years old Noah was diagnosed with Vanishing White
Matter Disease, a form of Leukodsytrophy, which is a life-limiting condition. Vanishing White Matter is a very rare condition which
affects the white matter on the brain. It is genetic and runs in the
family, and both his parents were carriers of the mutated gene.
Symptoms generally appear in a child who has been appearing to
develop fairly normal. The condition means that Noah will lose each
of his abilities and will become physically disabled. A striking feature
of the disease is that the symptoms get worse slowly for the most
part, but there are episodes of rapid deterioration that follows an
infection or mild head trauma. Noah could partially recover following
these episodes, or the episode could lead to coma and death.
Noah’s little sister, Gracie, was also diagnosed with the same
They are the only two children living in Northern Ireland with
Vanishing White Matter Disease so they have to travel at times for
treatment in Holland.
You can learn earn more of Noah and Gracie’s story on Facebook
A fundraising Dinner Dance will be held in the Masonic Centre,
Carrickfergus on Friday 15th June 2018. It will begin with a three
course meal followed by live band entertainment by a young group
A.L.S., music 70’s to present.
Dinner 7.30 for 7.45pm and tickets are £25.00 per couple or come
along after 9.00pm for the Dance, only £5.00 per head.
Ballot Prizes will be available and gladly received.
Contact:- 07817203585 (Gordon) or 07773566803 (Godfrey)
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Godfrey McCurry started crowdfunding