I am a mother of two lovely girls aged 3 and 1 years old, Amber and Grace.

In the time of my second pregnancy, I began to have difficulty breathing. I thought it may be due to a cold or an allergic reaction and I was expecting it would just get better. It only got worse.

At 3 months pregnant in April 2015, I was diagnosed with Subglottic Stenosis. My airway was only 4 mm in diameter. After blood analyses, it was confirmed idiopathic.

In June 2015, I was referred to a thoracic surgeon for a balloon dilation and could breathe again!
Unfortunately, after few months my breathing was starting to become difficult again.

Thankfully, I was able to give birth without having another procedure and Grace was fine.

But only 7 months later in May 2016, I was again referred to the surgeon to perform laser surgery. After that I was symptom free for a few months but again like the first time my breathing gradually became more restricted.

I am now booked for another dilation. But I cannot work anymore, I’m being more and more tired day after day.

This disease is rare. It affects mostly woman, however some men and children have it. It's something that needs to be known and research needs to be done. We don’t know yet the causes of the disease and the best treatment options.

I’m sorry I never thought that I will have to do this, to publish our story and to ask for help but please our small family need your help.
Help us continue to live decently.

Thank you all for your help
Lucy