Within an hour of Seren-Rose being born in July 2018 we were being told that something was wrong with her. ”Does she look like your other children” the doctors asked. Seren was unexpectedly small for her dates weighing just 4.14lb, 42cm in length and in the doctors language had “suspicious features”. Within 2 days we had our first diagnosis- Agensis of Corpus Callosum, basically the part of her brain that connects the 2 sides of the brain was missing.

As the days went on we discovered her Optic Nerves were small leading to a lifelong severe sight impairment and she has a moderate hearing impairment in both ears.

Seren also has other medical conditions including gastro reflux disease which has led to her needing to be fed by a tube and pump directly into her stomach (PEG fed), a sub-mucus cleft palate and a small hole in the heart.

With Serens condition we were told by doctors they were unable to predict her outcome or quality of life as this could range from severe disabilities to mild learning difficulties - this condition presents differently in everyone diagnosed but what was needed was early intervention.

For Seren to have the best possible life achievable for her she requires support from a wide range of professions including feeding specialists, dieticians, community nurses, Speech & Language, Physio therapy, occupational therapy and early education teams for multi-sensory impairments.

Although a content and happy baby Seren has not met her milestones and requires a more specialised and intense program of physio and occupational therapy to help her have as normal life as possible, however, this isn’t something the NHS can offer and would need to be privately funded. Recently we have found the need for her to also require Auditory Verbal Therapy which is highly specialised to help her auditory cortex make sense of the sounds she is hearing - this is to support her ability to verbally communicate in the future.

We are looking to raise as much money as possible to provide Seren with the opportunity every child should have - a normal childhood and the ability to become an independent young person and adult.

Any donations you could offer would be greatly appreciated and make a huge difference to Seren and our families lives.