Simon Davis, Craig Payne and Recce Clark running at Southwark park in Bermondsey on the 16th of December to help Ruby raise money for her charity she cares about Rett syndrome is an extremely difficult horrible condition taking away a child's ability to have a normal life, these children are born ok and regress at a year to 18 mths they suffer with breathing difficulties heart problems eating and drinking difficulties ,scoliosis,dystonia form of parkinsons disease hypermobility, aspraxia frustration unusful hand movements clapping rubbing biting loss of the ability to walk and talk plus much more your help would be extremely appreciated finding a cure for rett is extremely important and trials are already started so funding is extremely important