Multiminicore Myopathy is a rare progressive muscle-wasting condition that affects the skeletal, facial, respiratory and cardiac muscles amongst others. People experience progressive muscle weakness that affects mobility to varying degrees, need for breathing support via ventilation and is associated with a limited life expectancy. There is no treatment or cure for this type of Muscular Dystrophy with only 2,000 documented cases worldwide, researchers are still trying to understand the condition.

The Minicore Project was founded in 2011 and is the only UK based support + information resource specifically for this condition. Our goal is to support and provide up to date information to affected families.

Part of that support is to provide an opportunity for families to meet. Many have never and will never have the opportunity to meet someone else with the same diagnosis (due to its rarity + cases being so far apart). It's so important for personal wellbeing to have face-to-face support from others than you can truly identify with. We want to bring families together for 2 days in Birmingham for the very 1st meet-up for MMM. To meet the individuals they've been talking to for years online and to make lasting memories together as we plan a fully accessible group activity.

We can only achieve this with the support of donations. As The Minicore Project isn't yet a registered charity (hoping to be by 2019), we need help to make sure cost isn't an issue to bring all the 12 UK families together.

We appreciate any and all help given on behalf of all our families. Thank you!