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Rich Holmes raised £203 from 14 supporters
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Closed 19/03/2018
Weʼve raised £203 to Skydive for SENSE, a charity for deafblindness
- Bristol, United Kingdom
- Funded on Monday, 19th March 2018
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Story
From birth my youngest two children Emily and Daniel were profoundly deaf, this had a huge impact not just on ourselves but everyone around us, we had to change and adapt for our children.
Through genetic testing, we have now identified that they have Usher Syndrome, this is a genetic disorder that affects the eyes, ears and balance. They have type 1b and will eventually go night blind and lose their peripheral vision and in the worse case go completely blind.
We would like to raise awareness of this as it is a relatively rare disorder. I think we take hearing and seeing for granted. I shall have to watch my chidren grow knowing that there eye sight will start to deteriorate as they reach early adult hood. There is no cure as of yet, but with raising awareness we can work towards finding a cure.
All we raise will go towards helping find a cure and helping others in leading full lives the best they can.
Thank you.
Updates
1
- 6 years ago
Rich Holmes
6 years agoShare this update to help us raise more
Rich Holmes started crowdfunding
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Supporters
14
Zoe Curtin
Feb 19, 2018
Good luck! Such an amazing cause 👍
£10.00
Louise Wardle
Feb 18, 2018
Fantastic cause. X
£30.00
Val Senior
Nov 30, 2017
Good luck!
£20.00
Chris Wootton
Nov 26, 2017
Great parents. Great cause
£30.00
Jo Shayler
Nov 26, 2017
Really proud of you guys....adore those beautiful children. Always have my support x
£10.00
Fay Clegg
Nov 25, 2017
£5.00
Kelly Pugh
Nov 24, 2017
Goodluck Rich.thats amazing.x
£10.00
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