Weʼve raised £500 to raise funds to help Elsie on her journey with trichothiodystrophy.
- Glasgow, United Kingdom
- Funded on Saturday, 11th November 2017
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After a long year under investigation 2 year old Elsie was diagnosed with the rare genetic disorder Trichothiodystrophy in January 2017. Trichothiodystrophy affects many parts of the body. It causes delayed development, intellectual disability and recurrent infections. Elsie is short sighted and is extremely sensitive to ultraviolet rays from sunlight. On the plus side Elsie is very sociable, out going and has an engaging personality. There is no cure and very limited information. We hope to bring this condition to the attention of others and maybe one day treatment will become available.
Friends at Howden Group are trying to raise more awareness for this issue and to do that, we are trying going to hold a Walktober where we will form teams that will try to collectively walk (at least) a million steps in Walktober in order to raise more funds to help find a treatment for Elsie.
Updates appear here
Howden Group started crowdfunding
Leave a message of support
Nov 9, 2017
Nov 7, 2017
Good effort to everyone who took part.
Nov 5, 2017
Great cause. Well Done team!
Nov 3, 2017
Nov 2, 2017
Well done everyone!
Oct 23, 2017
Keep on walking.. :)
Oct 18, 2017
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