Story
Cystic fibrosis (CF) is a life limiting inherited disease affecting over 10000 people in the UK.
A young child with cystic fibrosis was unable to say the condition correctly and would say "sixty five roses" instead. This idea has been taken on by the CF Trust who host an annual 65 Roses Ball.
Following this theme I plan to run my first marathon in a bright yellow dress decorated with 65 roses 🌹I would love it if individuals or groups could sponsor a rose for a minimum of £30. Each rose will have their sponsors name written on a tag attached to their rose.
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The CF Trust do an amazing job. We first contacted them when our daughter Hannah was diagnosed with Cystic Fibrosis as a young baby.
They have offered invaluable support both emotionally and practically to us and others living with CF and their families.
The CF Trust also works very hard to support specialist services who care for people with CF.
They fund significant and cutting edge research into treatment of CF inparticular they have funded pioneering clinical trials into gene therapy here in the UK that have the potential to be life changing and could prevent or halt lung damage.
Thanks for taking the time to visit my JustGiving page.
🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.