Emily brown

Emily and Peter - 30 June 2012

Fundraising for Alex, The Leukodystrophy Charity
£2,176
raised
by 20 supporters
Donations cannot currently be made to this page
Celebrating the wedding of Emily Brown and Peter Olds, 30 June 2012
Participants: Emily Brown and Peter Olds
Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
We provide support to families affected with leukodystrophies

Story

In celebration of our wedding, Peter and I would like to support a cause close to our hearts.  

My 11 year old nephew, Isaac, is 6 months younger than my son Luis, who many of you know.  Very sadly, 3 years ago Isaac was diagnosed with ALD (Adrenoleukodystrophy).  ALD, which some of you may be aware of from the film Lorenzo's Oil, is an extremely rare neurological disorder that affects mainly boys and causes progressive damage to the brain.  Eventually it is terminal.  Isaac showed no initial symptoms and was only diagnosed following a routine eye test at the age of 8 which led the optician to advise that he should seek medical testing.  He is now in the very advanced stages of illness and has lost his sight, speech, and independent movement, amongst other things.

There is no cure for ALD but there are various research trials in progress and we would love you to support this cause so that we may make a significant donation.  Thank you.

 

About the charity

Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
Established in 2004, Alex TLC is the only charity in the UK that provides invaluable support and information for anyone with a leukodystrophy, their families, and carers.

Donation summary

Total raised
£2,176.00
+ £376.50 Gift Aid
Online donations
£2,176.00
Offline donations
£0.00

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