Crohn’s and Colitis UK is a national charity in the battle against Crohn’s Disease and Ulcerative Colitis. We are fighting to achieve a better quality of life for the 300,000 people in the UK suffering physically and emotionally from these and other forms of Inflammatory Bowel Disease (IBD). Ultimately, we want to find a cure.
As most of my family and few friends know, I was diagnosed with Ulcerative Colitis (UC), just over a year ago. It's not really something you think about going to the loo a lot. For me it did get to the stage where I probably spent more time in the loo than anything else. It has taken about 10 years for my conditions to be diagnosed. It has not been the most exciting ride for me the past year. I have spent more time on steroids than anticipated. Finally after an exhausting fight I have progressed to injections. Which seems to be controlling the condition. In the last year I have been in hospital at least 3 times, being told my colon will be removed, to hopefully now saving it, for the time being. As much as it effects me, constant fatigue, being bored and frustrated of taking so many pills I rattle. It also affects my family, mum, dad, sister brother in law, uncles, aunts and cousins, also close friends can be affected. Mum and dad have taking me to hospital in the early hours as I've been in pain. My uncle taking me to hospital. My sister and brother in law being lifesavers when my parents couldn't be there. I don't believe in anti depressants but it has got to the stage I have been so down, my sister and brother in law let me have my anti depressant which is not another pill to take, but two wonderful nieces who make me smile. The worst thing about this disease, is people say you look well, I thought you were ill. Yes I am ill but, UC doesn't rule me I rule it. I'm not back at clubbercise just yet, but hopefully soon I will be. I hope you can support me with finding a better 'cure' as this is me now, but if I can keep it controlled I will be a lot happier. Hopefully plenty of loos on the way, and i'm sure I'll sleep better once we have finished this walk :) x