To Save the Lives of Young People afflicted with this disease (see below)...
So I cannot directly help, I'm no medical expert...but if I can raise awareness and funds to support those that can, then there is hope and maybe eventually a brighter future for those affected by this...
What You Can Do?
Well firstly You could sponsor me . Even if is just to see me go through and back...
Secondly you could get involved, find out more: http://www.actionduchenne.org
Swim 1 mile on the hour, every hour, for 24 hours!
Burning between 8000 and 11500 calories each, equivalent to 15 roast dinners hence sustaining food intake and keeping it down is going to be a further essential challenge!
Saturday 4th October 2008
Starting at 9am for 24 hours!
High Wycombe Sports Centre
WHAT IS DUCHENNE MUSCULAR DYSTROPHY?
Duchenne muscular dystrophy is a genetic disorder caused by an error in the dystrophin gene. The condition causes progressive muscle weakness as the muscle cells break down and die.
Duchenne muscular dystrophy is a rare condition. About 100 boys are born with the condition in the UK each year and there are about 1,500 boys with the disorder living in the country at any one time.
Duchenne muscular dystrophy, named after the doctor who first studied this specific condition in the 1800s, mainly affects boys, with extremely rare exceptions.
Most affected boys show the first symptoms when they are aged between one and three. The features include:
* being unable to run or jump as well as their peers
* a difficulty climbing stairs
* a difficulty getting up from the floor
As they get older and the condition progresses they may be unable to walk as far or as fast as other children, occasionally even falling down. Some boys may also have learning and/or behavioural difficulties which start to show at this stage.
WHY ACTION DUCHENNE?
Action Duchenne (Formerly PPUK) exclusively funds research for a cure and promotes campaigns for better medical care for Duchenne and Becker Muscular Dystrophy. Duchenne is so severe that young men are totally paralysed by late teens and die young from respiratory or heart failure. Your donations and support will help us end this tragic waste of young lives.
PLEASE SUPPORT US AND HELP SAVE KIDS LIVES!
YOU CAN MAKE A DIFFERENCE.