Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.
The PCD Family Support Group is an invaluable resource for patients and families of people with PCD. The website is full of valuable information and advice, especially to those who are newly diagnosed.
I found out that my son had PCD when he was just three days old - a record-breaking early diagnosis. This was five years ago. As parents, we were quite scared of the implications of the diagnosis. The support I got from just the website alone was reassuring.
The chairperson of the charity, Fiona Copeland, is also extremely kind and helpful - always willing to lend a listening ear, and also impart useful advice.
I am raising funds for the PCD Family Support Group as a 'Thank you' for all the wonderful work they do, whether it's liasing with hospital teams, or organising family fun days, all to help people with PCD and their families too.
I also want to raise awareness about the condition. This is an extremely rare genetic condition, and we have come far in research and treatment - but so much more needs to be done.