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Andrew Haycock

Williams fund

Fundraising for Duchenne UK
£5,638
raised of £1,050 target
by 145 supporters
Donations cannot currently be made to this page
Duchenne UK

Verified by JustGiving

RCN 1147094
We have one clear aim: to End Duchenne

Story

Thanks for taking the time to visit my JustGiving page.

In June of 2016 I received the news that no parent should ever hear, that one day I will have to bury my son. William was 1 year old when we were told that he  had a rare genetic progressive muscle wasting condition called Duchenne Muscular dystrophy, for which there are no treatments and no cure. This condition will slowly rob him of his ability to walk around the age of 10, then move his arms, then breathe and finally it will stop his heart from beating. The average life expectancy up until a couple of years ago was 19. This, the cruelest of conditions, will rob my son, the most beautiful boy in the world, of his childhood then his life.

But there is hope, and at the moment its all we have. Charities set up by desperate parents such as myself have raised money and accelerated research to the point where there are now treatments in clinical trials. Duchenne UK is one such charity, run by parents who are aiming to do big things. But changing the world takes money, as much money as we can possibly throw at it and that's where we come in. I want to raise as much money as possible to help fund research. If scientists can find a way to stop the disease progressing my son may have the opportunity to have a "normal" life, but he and all the other boys like him need it as soon as possible. We are in a race against time. Please help in anyway you can. We can change the world and we can stop this disease and we can save my little boy but I can't do it alone. 

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About the charity

Duchenne UK

Verified by JustGiving

RCN 1147094
As the leading Duchenne muscular dystrophy (DMD) charity in the UK, we want to find effective treatments for DMD and end its devastating impact. We’re going further than anyone has before, and we’re doing it faster, because this generation of people living with DMD can’t wait.

Donation summary

Total raised
£5,638.00
+ £1,013.25 Gift Aid
Online donations
£5,638.00
Offline donations
£0.00

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