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Victoria Flintoft

Archie's Army DBA

Fundraising for Diamond Blackfan Anaemia Support Group Uk
£20,779
raised of £20,000 target
by 208 supporters
Donations cannot currently be made to this page
Event: SimplyHealth Great North Run 2018, on 9 September 2018
Participants: Family and friends of Archie
We fund research and host patient events to offer hope and support to those with DBA

Story

Archie suffers from a rare life threatening genetic condition,  Diamond Blackfan Anaemia (DBA) where his bone marrow fails to produce red blood cells. This means that Archie relies on blood transfusions every 3 weeks just to stay alive.

A result of having blood transfusions means a build up of iron in his body, if not treated this would mean that the iron would start to attack his organs starting with the liver and heart and ultimately would be fatal. To control this Archie has to have a needle inserted in to his leg 5 nights a week which is attached to a pump that pumps medication in to him while he sleeps. This break the iron down but it hurts 😢

In addition  to this Archie has developed Adrenal Insufficiency as a result of steroid therapy he received. This is a secondary life threatening condition and means that Archie is also dependent on steroids just to stay alive.

DBA UK are a huge support to the DBA community and they provide funding for research into better treatment paths for people effected by this rare and little known disease.......who knows, maybe one day even a cure!

Please, please if you can support Archie's Army in any way, please get in touch through Archie's Army on Facebook or message Vicky Flintoft (Archie's mum) direct. Every penny counts.....help us keep our children healthy and happy xxx

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About the charity

At DBA UK we aim to deliver support, research and hope to the DBA community in the UK by bringing families together, communicating the latest medical information and funding research into causes and cures.

Donation summary

Total raised
£20,778.98
+ £2,488.22 Gift Aid
Online donations
£20,778.98
Offline donations
£0.00

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