Hi, I'm Ella, I am 6 years old and on the 14th December 2012 I was diagnosed with Cockayne Syndrome.
Cockyane Syndrome is a premature ageing syndrome, it is where the DNA can't repair itself. It unfortunately leads to a short life expectancy. My family are utterly devasted and they turned to Amy and Friends who have helped us so much. Amy and Friends are a non-profit organisation that provides support to the CS children and their families and without them we would be lost!
Raising money for Amy and Friends will fund vital research for a cure for this horrible syndrome that is taking so many children's lives. They also help fund vital equipment for the children.
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.