Fiona Brinkworth

Fiona's page

Fundraising for PDA Society
£1,290
raised of £1,000 target
by 52 supporters
Donations cannot currently be made to this page
Event: Milton Keynes Marathon 2017, on 1 May 2017
PDA Society

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RCN 1165038
We Offer training, support & information to make life better for PDA people

Story

Squiggle was diagnosed with autism at around 3 years old. Her parents had already noticed long before then that the usual parenting approaches had the opposite affect on her, but the typical autism strategies also didn't help either. They somehow instinctively found our own way of approaching things with her but to be honest were baffled- clearly they were missing something! 

It was only when someone in an SEND support group suggested it might be useful for them to look into PDA - a subtype of autism that is generally not well known even amongst professionals and certainly not something that they had ever heard of - that everything finally started to make sense. After consultation, it turned out Squiggle has extreme PDA, and later discovered that she also has a severe anxiety disorder too.

The PDA Society have been a brilliant source of information and support for the family. The conference that Squiggle's dad attended previously really helped too; it was great for him to listen to the speakers and meet other parents in the same boat- a useful reminder that we are not alone! 

Huge thanks to the PDA Society for all their hard work. 


Running this will be the hardest challenge I've taken on ever - so please dig deep and make all these blisters worth it!! 


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About the charity

PDA Society

Verified by JustGiving

RCN 1165038
PDA (Pathological Demand Avoidance) is widely understood to be a profile on the autism spectrum, involving the avoidance of everyday demands and the use of ‘social’ strategies as part of this. PDA individuals share autistic characteristics and also have many of the ‘key features’ of a PDA profile. We provide information, support and training about PDA for individuals, families and professionals. We aim to increase acceptance and understanding of a PDA profile and to improve outcomes for individuals and families by focusing everyone involved on ‘what helps’. Each year we answer around 2,300 enquiries from people seeking support and deliver training to 2,400 parents, carers and professionals. Our information resources reach 500,000 people a year via our website and social media. All our services are run by the PDA community and include: • an enquiry line • an online forum • information resources • training • conference every other year We also share good practice, work in partnership with other organisations and promote research on PDA.

Donation summary

Total raised
£1,290.00
Online donations
£1,290.00
Offline donations
£0.00

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