Henry is 3 years old and has spent a considerable amount of time in Great Ormond street hospital. Henry was diagnosed with a rare genetic disorder called XIAP (X-linked inhibitor of apoptosis deficiency) at 2 months old.
At 9 months old Henry was admitted to intensive care after getting a blood infection which led to sepsis, following this he spent 11 months in Great Ormond street during which time he underwent a stem cell transplant.
Because of all of the medication and treatment Henry has received Henry has developmental delay and osteoporosis. He is still taking a considerable amount of medications and continues having treatment for ongoing medical issues including being tpn dependant.
We need help raising funds to make Henrys garden a safe and useable environment for him to play in with his older sisters Millie and Sophia.
If you would like to read more the have a look at Henry’s page, www.facebook.com/henrysxiapjourney
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.