62 %
£124.00
raised of £200 target
by 13 supporters
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Janine Felton avatar
Janine Felton

Janine's page

Fundraising for XP Support Group

62 %
£124.00
raised of £200 target
by 13 supporters
Donate
  • Event: Birmingham Half Marathon, 16 Oct 2016

XP Support Group

We support XP patients and raise money to provide UV proof clothes and window film

Story

unfortunately will not be able to run this year, but will pick up training next year and enter again

just found running sleeves, no more long-sleeved double layers , shall make running running more comfortable

10 mile went well knowing I'm being sponsored kept me going

planning a 10 mile run tomorrow morning starting my training early

Thanks for taking the time to visit my JustGiving Page. Many of you know I have a condition which makes me allergic to sunlight so thought it only fitting to raise funds for a charity close to my heart. Although I don't have XP this charity has helped me in the past with support, I have also visited the venue for the yearly Owl patrol and know what a difference it makes to peoples lives.

So for me running Birmingham half marathon is going to be a challenge the biggest challenge with be training through the summer months.

XP is an extremely rare genetic condition for which there is no cure. If affect less than 100 people in the UK and is characterized by an extreme sensitivity to UK rays. UK is in sun light and lots of artificial lighting. Unless patients with XP are protected from UK, their skin and eyes will become severely damaged which leads to cancer. The XP Support Group is a charitable trust whose aim is to relieve the needs of people with XP and other related conditions. The XP support group provides practical advice and support to patients and how to live with XP and aims to show people that living a life being protected from UV rays does not mean a life of isolation. They raise funds for research, give grants for UV protective equipment and assist families to attend a yearly night time camp. The Owl Patrol Night Camp is a flagship event for the support group , it provides indoor activities during the day and outside at night. The camp has been running since 2002.

Donatinf through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they will never sell your details or send unwanted emails. Once you donate, they'll send your money directly to the charity. So its more efficient way to donate - saving time and cutting costs for the charity.

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Supporters

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