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john mahoney avatar
john mahoney

John's Just Walk 2014 page

walking with the JeddiKnights for Reverse Retts for Reverse Rett because My Son is effected by MECP2 Duplication

214 %
£535.00
raised of £250 target
by 19 supporters
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Reverse Rett

We fund cutting edge research to reverse Rett Syndrome for good.

Charity Registration No. 1136809

Story

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My Son Jed suffers from MECP2 Duplication Syndrome. Its a genetic condition very closely related to Retts syndrome, affecting the same gene, and research into either will help both.

He is now 5 years old and attends a special  school which he loves going to.  Jed has limited mobility but still manages to open any door in front of him, and can walk fast when he wants something despite having a bit of a wobble.  Although he can not speak he is often able to let us know what he wants.  His ability to snatch a piece of toast without you seeing him is an amazing sight to behold.  He has loads of energy, especially at 5 o clock in the morning. He loves to tickle feet, laughs a lot and plays with Molly the dog.  He also loves his food.

There have been some recent breakthroughs in research which means that there is now a real chance of finding ways to reverse some of the devastating effects of this disorder.  It would be the most fantastic result if some of Jed's problems were minimised or reversed, or if children in the future were given a chance to be well.  Your money will help this research to continue so that the impossible becomes possible.

thank you very much.

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